Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational
about
A systematic review of approaches for engaging patients for research on rare diseasesThe TREAT-NMD advisory committee for therapeutics (TACT): an innovative de-risking model to foster orphan drug developmentPatient/family views on data sharing in rare diseases: study in the European LeukoTreat project.'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics researchLooking Forward to New Therapies: A Personal Perspective on the Translational Landscape for Muscular Dystrophies.Natural History, Trial Readiness and Gene Discovery: Advances in Patient Registries for Neuromuscular Disease.Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.
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Q26822274-5303B10B-2ED8-4A12-A82E-EEB4DA91F325Q28088277-0407C39C-DBEB-4EA7-A144-FAFBAB4A117AQ30973583-EFF37B59-A104-4A75-94D5-6EDE18A2DDF5Q31069543-A41818E6-FD3D-4440-8CB0-4349566B068CQ37589787-3764E7B6-95E4-4CC4-81BB-33CEDFDC0D59Q45951421-6066FCFD-7845-463F-8A5E-430E50C3A4D2Q47159898-8B3FBB7C-A92D-4D82-84D1-6A6859639080
P2860
Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational
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2013 nî lūn-bûn
@nan
2013 թուականի Յունուարին հրատարակուած գիտական յօդուած
@hyw
2013 թվականի հունվարին հրատարակված գիտական հոդված
@hy
2013年の論文
@ja
2013年論文
@yue
2013年論文
@zh-hant
2013年論文
@zh-hk
2013年論文
@zh-mo
2013年論文
@zh-tw
2013年论文
@wuu
name
Guidance in social and ethical ...... translating" the translational
@ast
Guidance in social and ethical ...... translating" the translational
@en
Guidance in social and ethical ...... translating" the translational
@nl
type
label
Guidance in social and ethical ...... translating" the translational
@ast
Guidance in social and ethical ...... translating" the translational
@en
Guidance in social and ethical ...... translating" the translational
@nl
prefLabel
Guidance in social and ethical ...... translating" the translational
@ast
Guidance in social and ethical ...... translating" the translational
@en
Guidance in social and ethical ...... translating" the translational
@nl
P2093
P2860
P50
P921
P1433
P1476
Guidance in social and ethical ...... translating" the translational
@en
P2093
Agnes Herczegfalvi
Alessandra Ferlini
Christoph Rehmann-Sutter
Elizabeth Vroom
Emma Heslop
Francoise Rouault
Jes Rahbek
Joseph Irwin
Kate Bushby
Lynn Hagger
P2860
P356
10.1371/CURRENTS.MD.F90B49429FA814BD26C5B22B13D773EC
P407
P577
2013-01-10T00:00:00Z