'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine

'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine

Item
http://www.wikidata.org/entity/Q28602727
Data Sharing and the Idea of Ownership.Approaching confidentiality at a familial level in genomic medicine: a focus group study with healthcare professionals.Returning genome sequences to research participants: Policy and practice.Healthcare professionals' and patients' perspectives on consent to clinical genetic testing: moving towards a more relational approach.How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study.Ethical issues in the evaluation of adults with suspected genetic neuromuscular disorders.Beyond clinical utility: The multiple values of DTC genetics.Beyond individualism: Is there a place for relational autonomy in clinical practice and research?The challenges of the expanded availability of genomic information: an agenda-setting paper.Limitations and Pitfalls of Using Family Letters to Communicate Genetic Risk: a Qualitative Study with Patients and Healthcare Professionals.Communication of Information about Genetic Risks: Putting Families at the Center.Issues Arising in Psychological Consultations to Help Parents Talk to Minor and Young Adult Children about their Cancer Genetic Test Result: a Guide to Providers.Tensions in ethics and policy created by National Precision Medicine Programs.Alerting relatives about heritable risks: the limits of confidentiality.
P2860

'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine

Item
http://www.wikidata.org/entity/Q28602727
description
2016 nî lūn-bûn
@nan
2016 թուականի Մարտին հրատարակուած գիտական յօդուած
@hyw
2016 թվականի մարտին հրատարակված գիտական հոդված
@hy
2016年の論文
@ja
2016年学术文章
@wuu
2016年学术文章
@zh-cn
2016年学术文章
@zh-hans
2016年学术文章
@zh-my
2016年学术文章
@zh-sg
2016年學術文章
@yue
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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'Is this knowledge mine and no ...... on-sharing in genetic medicine
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10.1136/MEDETHICS-2015-102781
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