Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research
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The tension between data sharing and the protection of privacy in genomics researchIf you build it, they will come: unintended future uses of organised health data collectionsIdentifiability in biobanks: models, measures, and mitigation strategiesLegal assessment tool (LAT): an interactive tool to address privacy and data protection issues for data sharing.Secondary use of clinical data: the Vanderbilt approachRoutes for breaching and protecting genetic privacySharing individual level data from observational studies and clinical trials: a perspective from NHLBIAssessing and managing risk when sharing aggregate genetic variant dataiDASH: integrating data for analysis, anonymization, and sharingWho shares? Who doesn't? Factors associated with openly archiving raw research dataEthical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experienceOrchestrating differential data access for translational research: a pilot implementation.Efficient and effective pruning strategies for health data de-identification.Advancing global health research through digital technology and sharing data.Inferring genetic ancestry: opportunities, challenges, and implications.Security controls in an integrated Biobank to protect privacy in data sharing: rationale and study design.Practical barriers and ethical challenges in genetic data sharing.Enabling genomic-phenomic association discovery without sacrificing anonymity.Principles of human subjects protections applied in an opt-out, de-identified biobank.Methods for the de-identification of electronic health records for genomic researchAttribute Utility Motivated k-anonymization of datasets to support the heterogeneous needs of biomedical researchers.Potential value of electronic prescribing in health economic and outcomes research.Reducing patient re-identification risk for laboratory results within research datasets.Identifying clinical/translational research cohorts: ascertainment via querying an integrated multi-source databaseEthical and practical challenges to studying patients who opt out of large-scale biorepository research.Checking Questionable Entry of Personally Identifiable Information Encrypted by One-Way Hash TransformationProfessional networks in the life sciences: linking the linked.Questioning the limits of genomic privacy.Assessing privacy risks in population health publications using a checklist-based approach.An Open Source Tool for Game Theoretic Health Data De-Identification.Automated Real-Time Collection of Pathogen-Specific Diagnostic Data: Syndromic Infectious Disease EpidemiologyIndustrial Data Sharing with Data Access PolicyIs It Ethical to Use Genealogy Data to Solve Crimes?
P2860
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P2860
Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research
description
2010 թուականի Յունուարին հրատարակուած գիտական յօդուած
@hyw
2010 թվականի հունվարին հրատարակված գիտական հոդված
@hy
artículu científicu espublizáu en 2010
@ast
scientific article (publication date: 2010)
@en
vedecký článok (publikovaný 2010-01)
@sk
vědecký článek publikovaný v roce 2010
@cs
wetenschappelijk artikel (gepubliceerd in 2010-01)
@nl
wissenschaftlicher Artikel
@de
наукова стаття, опублікована в січні 2010
@uk
مقالة علمية (نشرت عام 2010)
@ar
name
Technical and policy approache ...... cal and translational research
@ast
Technical and policy approache ...... cal and translational research
@en
Technical and policy approache ...... cal and translational research
@nl
type
label
Technical and policy approache ...... cal and translational research
@ast
Technical and policy approache ...... cal and translational research
@en
Technical and policy approache ...... cal and translational research
@nl
prefLabel
Technical and policy approache ...... cal and translational research
@ast
Technical and policy approache ...... cal and translational research
@en
Technical and policy approache ...... cal and translational research
@nl
P2860
P921
P3181
P1476
Technical and policy approache ...... cal and translational research
@en
P2093
David Karp
Richard H Scheuermann
P2860
P3181
P356
10.2310/JIM.0B013E3181C9B2EA
P407
P577
2010-01-01T00:00:00Z