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Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

http://www.wikidata.org/entity/Q30529892

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Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review Scientists' perspectives on consent in the context of biobanking research.Ethical issues in consumer genome sequencing: Use of consumers' samples and data Broad Consent for Research With Biological Samples: Workshop Conclusions Qualitative study on custodianship of human biological material and data stored in biobanks Consent for the use of human biological samples for biomedical research: a mixed methods study exploring the UK public's preferences.Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project.Assessment of knowledge about biobanking among healthcare students and their willingness to donate biospecimens.Young people's awareness on biobanking and DNA profiling: results of a questionnaire administered to Italian university students Public's attitudes on participation in a biobank for research: an Italian survey Genetic causal beliefs about morbidity: associations with health behaviors and health outcome beliefs about behavior changes between 1982-2002 in the Finnish population Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.National survey and community advisory board development for a bipolar disorder biobank.Factors influencing public participation in biobanking.Legal & ethical compliance when sharing biospecimen.Biobank attributes associated with higher patient participation: a randomized study.Informed consent, biobank research, and locality: perceptions of breast cancer patients in three European countries.Identifying public expectations of genetic biobanks.Biobank research, informed consent and society. Towards a new alliance?A Mobilising Concept? Unpacking Academic Representations of Responsible Research and Innovation.Participants' Accounts on Their Decision to Join a Cohort Study With an Attached Biobank: A Qualitative Content Analysis Study Within Two German Studies.Planning Today for Tomorrow's Research: Analysis of Factors Influencing Participation in a Pediatric Cancer Research Biorepository.The Public's Awareness of and Attitude Toward Research Biobanks - A Regional German Survey.Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants.Going Beyond the False Dichotomy of Broad or Specific Consent: A Meta-Perspective on Participant Choice in Research Using Human Tissue

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Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

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2012 nî lūn-bûn

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2012年の論文

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2012年論文

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European Journal of Human Genetics

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Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

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Abbi Hobbs

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Alexandra Soulier

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George Gaskell

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Herbert Gottweis

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Ilpo Helén

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Jacqueline Broerse

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Johannes Starkbaum

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Karoliina Snell

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Maria Paschou

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Monica M Gerber

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P2860

Public and biobank participant attitudes toward genetic research participation and data sharing

Trends in ethical and legal frameworks for the use of human biobanks.

A study of public opinion on the use of tissue samples from living subjects for clinical research

Public opinion about the importance of privacy in biobank research.

The ethics of research biobanking: a critical review of the literature.

Tissue donation to biobanks: a review of sociological studies.

The privacy-reciprocity connection in biobanking: comparing German with UK strategies.

An investigation of patients' motivations for their participation in genetics-related research.

Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

The ethics of research using biobanks: reason to question the importance attributed to informed consent.

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14-20

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10.1038/EJHG.2012.104

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1

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21

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22669414

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