Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences - Wikidata - wikimedia - TriplyDB

Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences

Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences

http://www.wikidata.org/entity/Q30539740

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Patient involvement in clinical research: why, when, and how Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody-associated Vasculitis Using the OMERACT Process Patient reported outcomes in rheumatoid arthritis clinical trials Protocol of a mixed method, randomized controlled study to assess the efficacy of a psychosocial intervention to reduce fatigue in patients with End-Stage Renal Disease (ESRD)Exploring neurodevelopmental outcome measures used in children with cerebral malaria: the perspectives of caregivers and health workers in Malawi Clinical trials from the patient perspective: survey in an online patient community.Development of a core outcome set for effectiveness trials aimed at optimising prescribing in older adults in care homes.Could digital patient communities be the launch pad for patient-centric trial design?Patient-initiated research in rheumatic diseases in Sweden--dignity, identity and quality of life in focus when patients set the research agenda.An innovative lab-based training program to help patient groups understand their disease and the research process.Patient participation as an integral part of patient-reported outcomes development ensures the representation of the patient voice: a case study from the field of rheumatology Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences--lessons learnt from a decade of collaboration in OMERACT: a qualitative study Service users' perspectives in the design of an online tool for assisted self-help in mental health: a case study of implications.Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT)."If i wasn't this robust": patients' expectations and experiences at the Outcome Measures in Rheumatology Conference 2010.Patient involvement in outcome measures for psoriatic arthritis.The Benefits of Patient Involvement for Translational Research.Patient-reported outcomes in core domain sets for rheumatic diseases.Incorporating the patient's perspective in outcomes research.Meeting the Challenges of Intervention Research in Health Science: An Argument for a Multimethod Research Approach.Effect of anti-TNF and conventional synthetic disease-modifying anti-rheumatic drug treatment on work disability and clinical outcome in a multicentre observational cohort study of psoriatic arthritis.Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium.Patient and researcher perspectives on facilitating patient and public involvement in rheumatology research.Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers.Commentary: Patients as Partners: Building on the Experience of Outcome Measures in Rheumatology.What are the important outcomes in traumatic dental injuries? An international approach to the development of a core outcome set.A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress.Strength in Numbers: an international consensus conference to develop a novel approach to care delivery for young adults with type 1 diabetes, the D1 Now Study.Using PROMs in Healthcare: Who Should Be in the Driving Seat-Policy Makers, Health Professionals, Methodologists or Patients?What's in a "research passport"? A collaborative autoethnography of institutional approvals in public involvement in research.Patients' motivations and interest in research: characteristics of volunteers for patient-led projects on PatientsLikeMe.Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF.Parent, patient and clinician perceptions of outcomes during and following neonatal care: a systematic review of qualitative research Classification and Outcome Measures for Psoriatic Arthritis

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Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences

http://www.wikidata.org/entity/Q30539740

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Maarten de Wit

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Marije Koelewijn-van Loon

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Sarah Collins

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Tineke Abma

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P2860

The COMET (Core Outcome Measures in Effectiveness Trials) Initiative: Its Role in Improving Cochrane Reviews

A new approach to defining disease status in ankylosing spondylitis: the Bath Ankylosing Spondylitis Disease Activity Index

Patients as partners in responsive research: methodological notions for collaborations in mixed research teams.

Patient participation as dialogue: setting research agendas.

Patient perspective in outcome assessments--perceptions or something more?

The Keele community knee pain forum: action research to engage with stakeholders about the prevention of knee pain and disability

Using the Delphi technique to determine which outcomes to measure in clinical trials: recommendations for the future based on a systematic review of existing studies.

Minimal clinically important difference module: summary, recommendations, and research agenda.

Outcomes from the Patient Perspective Workshop at OMERACT 6.

Patients and clinicians have different perspectives on outcomes in arthritis.

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