Power to the people: participant ownership of clinical trial data.
about
Personal Genome Sequencing in Ostensibly Healthy Individuals and the PeopleSeq ConsortiumFrom patients to partners: participant-centric initiatives in biomedical researchSharing data from MS clinical trials: Opportunities, challenges, and future directionsA system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness researchRoutes for breaching and protecting genetic privacyParticipant-Centric Initiatives: Tools to Facilitate Engagement In ResearchA human rights approach to an international code of conduct for genomic and clinical data sharingRevisiting respect for persons in genomic researchEthical issues in health research with novel online sourcesPsychological and behavioural impact of returning personal results from whole-genome sequencing: the HealthSeq projectLearning from hackers: open-source clinical trials.The innovative medicines initiative: a European response to the innovation challenge.Adapting standards: ethical oversight of participant-led health research.Ethics Standards (HRPP) and Public Partnership (PARTAKE) to Address Clinical Research Concerns in India: Moving Toward Ethical, Responsible, Culturally Sensitive, and Community-Engaging Clinical Research.PARTAKE survey of public knowledge and perceptions of clinical research in India.Clinical Research Environment in India: Challenges and Proposed SolutionsYou never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative.Reporting actionable research results: shared secrets can save lives.Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health.An end to the myth: there is no drug development pipeline.Realizing Our Potential in Biobanking: Disease Advocacy Organizations Enliven Translational ResearchPrecision medicine at the crossroads.How disease advocacy organizations participate in clinical research: a survey of genetic organizations.Overcoming the obstacles to returning genomic research results.
P2860
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P2860
Power to the people: participant ownership of clinical trial data.
description
2011 nî lūn-bûn
@nan
2011 թուականի Փետրուարին հրատարակուած գիտական յօդուած
@hyw
2011 թվականի փետրվարին հրատարակված գիտական հոդված
@hy
2011年の論文
@ja
2011年論文
@yue
2011年論文
@zh-hant
2011年論文
@zh-hk
2011年論文
@zh-mo
2011年論文
@zh-tw
2011年论文
@wuu
name
Power to the people: participant ownership of clinical trial data.
@ast
Power to the people: participant ownership of clinical trial data.
@en
type
label
Power to the people: participant ownership of clinical trial data.
@ast
Power to the people: participant ownership of clinical trial data.
@en
prefLabel
Power to the people: participant ownership of clinical trial data.
@ast
Power to the people: participant ownership of clinical trial data.
@en
P2860
P1476
Power to the people: participant ownership of clinical trial data.
@en
P2093
Patrick F Terry
P2860
P356
10.1126/SCITRANSLMED.3001857
P407
P577
2011-02-01T00:00:00Z