Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
about
Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.FORGE Canada Consortium: outcomes of a 2-year national rare-disease gene-discovery project.Living laboratory: whole-genome sequencing as a learning healthcare enterprise.Incidental findings of uncertain significance: To know or not to know--that is not the question.Expectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study.Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Incidentalome from Genomic Sequencing: A Barrier to Personalized Medicine?Adolescent perspectives on the return of individual results in genomic addiction research.Is "incidental finding" the best term?: a study of patients' preferencesDisclosure of incidental findings in cancer genomic research: investigators' perceptions on obligations and barriers.'Ethical responsibility' or 'a whole can of worms': differences in opinion on incidental finding review and disclosure in neuroimaging research from focus group discussions with participants, parents, IRB members, investigators, physicians and commuWhole-exome sequencing in pediatrics: parents' considerations toward return of unsolicited findings for their child.Pathogenic variants in the healthy elderly: unique ethical and practical challenges.Parents' Perspectives on Supporting Their Decision Making in Genome-Wide Sequencing.Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results.Diagnosis of rare diseases under focus: impacts for Canadian patients.Genetic counselling difficulties and ethical implications of incidental findings from array-CGH: a 7-year national survey.Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.Patient perspectives on whole-genome sequencing for undiagnosed diseases.Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative processMeeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues
P2860
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P2860
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
description
2013 nî lūn-bûn
@nan
2013 թուականի Դեկտեմբերին հրատարակուած գիտական յօդուած
@hyw
2013 թվականի դեկտեմբերին հրատարակված գիտական հոդված
@hy
2013年の論文
@ja
2013年論文
@yue
2013年論文
@zh-hant
2013年論文
@zh-hk
2013年論文
@zh-mo
2013年論文
@zh-tw
2013年论文
@wuu
name
Returning incidental findings ...... dren affected by rare diseases
@ast
Returning incidental findings ...... dren affected by rare diseases
@en
Returning incidental findings ...... dren affected by rare diseases
@nl
type
label
Returning incidental findings ...... dren affected by rare diseases
@ast
Returning incidental findings ...... dren affected by rare diseases
@en
Returning incidental findings ...... dren affected by rare diseases
@nl
prefLabel
Returning incidental findings ...... dren affected by rare diseases
@ast
Returning incidental findings ...... dren affected by rare diseases
@en
Returning incidental findings ...... dren affected by rare diseases
@nl
P2093
P2860
P50
P1476
Returning incidental findings ...... dren affected by rare diseases
@en
P2093
Conrad V Fernandez
Durhane Wong-Rieger
Erika Kleiderman
Gail Ouellette
Julie Richer
P2860
P304
P356
10.1136/MEDETHICS-2013-101648
P577
2013-12-19T00:00:00Z