The experience of families with children with trisomy 13 and 18 in social networks.
about
The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic reviewFinding people who will tell you their thoughts on genomics-recruitment strategies for social sciences researchThe trisomy 18 syndrome.Ethical language and decision-making for prenatally diagnosed lethal malformations"Don't Want No Risk and Don't Want No Problems": Public Understandings of the Risks and Benefits of Non-Invasive Prenatal Testing in the United StatesA routine tool with far-reaching influence: Australian midwives' views on the use of ultrasound during pregnancy.Clinical features and survival in individuals with trisomy 18: A retrospective one-center study of 44 patients who received intensive care treatmentsMortality and morbidity of VLBW infants with trisomy 13 or trisomy 18Perinatal management of trisomy 18: a survey of obstetricians in Australia, New Zealand and the UK"You Can Carry the Torch Now:" A Qualitative Analysis of Parents' Experiences Caring for a Child with Trisomy 13 or 18.Treatment Decisions for Babies with Trisomy 13 and 18.Trisomy 13 and 18: Selecting the road previously not taken.Impact on family and parental stress of prenatal vs postnatal repair of myelomeningocele.Stability and change in sustainability of daily routines and social networks in families of children with profound intellectual and multiple disabilities.Changes in perinatal hospital deaths occurring outside the neonatal intensive care unit over a decade.Medical indication regarding life-sustaining treatment for children: Focus groups with clinicians.Phenotypic extremes in liveborn monozygotic twins with mosaic Edwards syndrome.Medical interventions for children with trisomy 13 and trisomy 18: what is the value of a short disabled life?Perspectives on anticipated quality-of-life and recommendations for neonatal intensive care: a survey of neonatal providers.Major anomalies and birth-weight influence NICU interventions and mortality in infants with trisomy 13 or 18."We want to do everything": how parents represent their experiences with maternal-fetal surgery online.Parent Perspectives of Support Received from Physicians and/or Genetic Counselors Following a Decision to Continue a Pregnancy with a Prenatal Diagnosis of Trisomy 13/18.Parental hopes, interventions, and survival of neonates with trisomy 13 and trisomy 18.Medical interventions and survival by gender of children with trisomy 18.Factors Influencing Outcomes After Cardiac Intervention in Infants with Trisomy 13 and 18.Shared decision making and the pathways approach in the prenatal and postnatal management of the trisomy 13 and trisomy 18 syndromes.Responding to parental requests for life-sustaining treatment - relational potential revisited.Unexpected Survivors: Children With Life-Limiting Conditions of Uncertain Prognosis.Incompatible with Care: Examining Trisomy 18 Medical Discourse and Families' Counter-discourse for Recuperative Ethos.Association of trisomy 18 with hepatoblastoma and its implications.A tumor profile in Patau syndrome (trisomy 13).Surviving with trisomy 13: Provider and parent perspectives and the role of the pediatric palliative care program.Hepatoblastoma in a 15-month-old female with trisomy 13.Surgical intervention for esophageal atresia in patients with trisomy 18.The impact of a sibling's life-limiting genetic condition on adult brothers and sisters.Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18.Arrogance-Based Medicine: Guidelines Regarding Genetic Testing in Children
P2860
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P2860
The experience of families with children with trisomy 13 and 18 in social networks.
description
2012 nî lūn-bûn
@nan
2012 թուականի Յուլիսին հրատարակուած գիտական յօդուած
@hyw
2012 թվականի հուլիսին հրատարակված գիտական հոդված
@hy
2012年の論文
@ja
2012年論文
@yue
2012年論文
@zh-hant
2012年論文
@zh-hk
2012年論文
@zh-mo
2012年論文
@zh-tw
2012年论文
@wuu
name
The experience of families with children with trisomy 13 and 18 in social networks.
@ast
The experience of families with children with trisomy 13 and 18 in social networks.
@en
The experience of families with children with trisomy 13 and 18 in social networks.
@nl
type
label
The experience of families with children with trisomy 13 and 18 in social networks.
@ast
The experience of families with children with trisomy 13 and 18 in social networks.
@en
The experience of families with children with trisomy 13 and 18 in social networks.
@nl
prefLabel
The experience of families with children with trisomy 13 and 18 in social networks.
@ast
The experience of families with children with trisomy 13 and 18 in social networks.
@en
The experience of families with children with trisomy 13 and 18 in social networks.
@nl
P356
P1433
P1476
The experience of families with children with trisomy 13 and 18 in social networks.
@en
P2093
Annie Janvier
Barbara Farlow
P304
P356
10.1542/PEDS.2012-0151
P407
P577
2012-07-23T00:00:00Z