Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles - Wikidata - wikimedia - TriplyDB

Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles

Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles

http://www.wikidata.org/entity/Q35406095

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Consenting for current genetic research: is Canadian practice adequate?Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice.Genetic counseling practice in next generation sequencing research: implications for the ethical oversight of the informed consent process.The ethics of complexity. Genetics and autism, a literature review.Parents' perspectives on participating in genetic research in autism.Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder?Information that should be given to HIV cohort participants during ongoing research: the viewpoints of patient representatives and research professionals

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Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles

http://www.wikidata.org/entity/Q35406095

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2011 nî lūn-bûn

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2011 թուականի Յունիսին հրատարակուած գիտական յօդուած

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2011年の論文

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European Journal of Human Genetics

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Beatrice Godard

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Laurence Baret

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P2860

Public expectations for return of results from large-cohort genetic research

Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results

Avoiding versus seeking: the relationship of information seeking to avoidance, blunting, coping, dissonance, and related concepts.

When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results

Disclosure of individual genetic data to research participants: the debate reconsidered.

Receiving a summary of the results of a trial: qualitative study of participants' views.

Disclosing individual results of clinical research: implications of respect for participants.

Disclosing individual genetic results to research participants.

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

Disclosure of the right of research participants to receive research results: an analysis of consent forms in the Children's Oncology Group.

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