Public attitudes regarding the use of residual newborn screening specimens for research
about
If you build it, they will come: unintended future uses of organised health data collectionsRetention and research use of residual newborn screening bloodspotsAnalysis of motivations that lead women to participate (or not) in a newborn cohort studyAssessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.Engaging a state: Facebook comments on a large population biobank.'Cool! and creepy': engaging with college student stakeholders in Michigan's biobank.Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.Testing an online, dynamic consent portal for large population biobank research.Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities.Congenital Hypothyroidism Long-Term Follow-up Project: Navigating the Rough Waters of a Multi-Center, Multi-State Public Health Project.Return of Results from Research Using Newborn Screening Dried Blood SamplesAttitudes about the use of newborn dried blood spots for research: a survey of underrepresented parentsConsenting postpartum women for use of routinely collected biospecimens and/or future biospecimen collection.Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies.Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing.From newborn screening to population health research: implementation of the Michigan BioTrust for health.Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.Factors associated with knowledge of and satisfaction with newborn screening education: a survey of mothersCommunity perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health.Implications of newborn screening for nurses.Inborn errors of metabolism and expanded newborn screening: review and update.Ethical issues in pediatric genetic testing and screening.Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois.Public reaction to direct-to-consumer online genetic tests: Comparing attitudes, trust and intentions across commercial and conventional providers.Residual newborn screening samples for research: parental information needs for decision-making.Education and parental involvement in decision-making about newborn screening: understanding goals to clarify content.Newborn screening: education, consent, and the residual blood spot. The position of the national society of genetic counselors.Crushing Consent Under the Weight of Expectations.Facilitators and Barriers to Pre-Exposure Prophylaxis (PrEP) Use Among Black Individuals in the United States: Results from the National Survey on HIV in the Black Community (NSHBC).Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.Public attitudes regarding the use of electronic health information and residual clinical tissues for research.Benefits and burdens of newborn screening: public understanding and decision-making
P2860
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P2860
Public attitudes regarding the use of residual newborn screening specimens for research
description
2012 nî lūn-bûn
@nan
2012年の論文
@ja
2012年論文
@yue
2012年論文
@zh-hant
2012年論文
@zh-hk
2012年論文
@zh-mo
2012年論文
@zh-tw
2012年论文
@wuu
2012年论文
@zh
2012年论文
@zh-cn
name
Public attitudes regarding the use of residual newborn screening specimens for research
@ast
Public attitudes regarding the use of residual newborn screening specimens for research
@en
type
label
Public attitudes regarding the use of residual newborn screening specimens for research
@ast
Public attitudes regarding the use of residual newborn screening specimens for research
@en
prefLabel
Public attitudes regarding the use of residual newborn screening specimens for research
@ast
Public attitudes regarding the use of residual newborn screening specimens for research
@en
P2093
P2860
P356
P1433
P1476
Public attitudes regarding the use of residual newborn screening specimens for research
@en
P2093
Aaron Goldenberg
Erin Rothwell
Jeffrey R Botkin
Louisa Stark
Matthew Burbank
Michelle Lewis
Rebecca Anderson
P2860
P304
P356
10.1542/PEDS.2011-0970
P407
P577
2012-01-16T00:00:00Z