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IRB perspectives on the return of individual results from genomic research

IRB perspectives on the return of individual results from genomic research

http://www.wikidata.org/entity/Q36383476

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Genetic studies of quantitative MCI and AD phenotypes in ADNI: Progress, opportunities, and plans Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature Ethical and legal implications of whole genome and whole exome sequencing in African populations.Return of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT).Genomics education for the public: perspectives of genomic researchers and ELSI advisors Merging Electronic Health Record Data and Genomics for Cardiovascular Research: A Science Advisory From the American Heart Association.Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings A framework for analyzing the ethics of disclosing genetic research findings.Experiences and attitudes of genome investigators regarding return of individual genetic test results.Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project Neglected ethical issues in biobank management: Results from a U.S. study Research participant-centered outcomes at NIH-supported clinical research centers.The unintended implications of blurring the line between research and clinical care in a genomic age.The translational potential of research on the ethical, legal, and social implications of genomics Reporting Incidental Findings in Genomic Scale Clinical Sequencing-A Clinical Laboratory Perspective: A Report of the Association for Molecular Pathology.Return of research results from pharmacogenomic versus disease susceptibility studies: what's drugs got to do with it?Impact of Next Generation Sequencing on the Organization and Funding of Returning Research Results: Survey of Canadian Research Ethics Boards Members.Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles Disclosure of incidental findings from next-generation sequencing in pediatric genomic research Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice?Next-generation sequencing in hematologic malignancies: what will be the dividends?Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.Personalized medicine in thrombosis: back to the future.A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs Characterizing biobank organizations in the U.S.: results from a national survey Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study.Managing incidental genomic findings in clinical trials: fulfillment of the principle of justice.A Systematic Review of the Management of Incidental Findings in Genomic Research.Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach.Participants' Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles.When Patient Engagement and Research Ethics Collide: Lessons from a Dementia Forum.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.Ethical Issues in Contemporary Clinical Genetics

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IRB perspectives on the return of individual results from genomic research

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IRB perspectives on the return of individual results from genomic research

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IRB perspectives on the return of individual results from genomic research

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IRB perspectives on the return of individual results from genomic research

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GRRIP Consortium

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Georgia L Wiesner

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Helene Starks

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Janell M Markey

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P2860

The law of incidental findings in human subjects research: establishing researchers' duties

Incidental findings in genetics research using archived DNA

Attitudes toward genetic research review: results from a survey of human genetics researchers

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

Professional integrity in clinical research.

Communicating the results of clinical research to participants: attitudes, practices, and future directions.

Researcher practices on returning genetic research results.

Disclosing individual results of clinical research: implications of respect for participants.

The incidentalome: a threat to genomic medicine.

Disclosing individual genetic results to research participants.

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10.1038/GIM.2011.10

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