Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public? - Wikidata - wikimedia - TriplyDB

Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

http://www.wikidata.org/entity/Q36404491

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Comparison of consumers' views on electronic data sharing for healthcare and research Developing a new model for patient recruitment in mental health services: a cohort study using Electronic Health Records Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK A Protocol for the secure linking of registries for HPV surveillance Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak Respecting donors to biobank research.Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions.A survey aimed at general citizens of the US and Japan about their attitudes toward electronic medical data handling Parent perspectives on privacy and governance for a pediatric repository of non-biological, research data.Glad you asked: participants' opinions of re-consent for dbGap data submission Saudi views on consenting for research on medical records and leftover tissue samples.A randomised controlled trial to compare opt-in and opt-out parental consent for childhood vaccine safety surveillance using data linkage: study protocol.Public preferences about secondary uses of electronic health information.The re-identification risk of Canadians from longitudinal demographics.Estimating the re-identification risk of clinical data sets Parent perspectives on consent for the linkage of data to evaluate vaccine safety: a randomised trial of opt-in and opt-out consent.Acceptability and perceived barriers and facilitators to creating a national research register to enable 'direct to patient' enrolment into research: the Scottish Health Research Register (SHARE).Strategies for maintaining patient privacy in i2b2.Population attitudes towards research use of health care registries: a population-based survey in Finland The importance of purpose: moving beyond consent in the societal use of personal health information.Demographic differences in willingness to provide broad and narrow consent for biobank research.A survey of patient perspectives on the research use of health information and biospecimens Participant views on consent in cancer genetics research: preparing for the precision medicine era.Joint replacement recipients' views about health information privacy.Public opinion about the importance of privacy in biobank research.Patient informed governance of distributed research networks: results and discussion from six patient focus groups "It's my blood": ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants.Use of electronic patient records for research: views of patients and staff in general practice.Stakeholders' views on data sharing in multicenter studies.Stepping Up to the Plate: An Agenda for Research and Policy Action on Electronic Medical Records in Canadian Primary Healthcare.Patients' views about the use of their personal information from general practice medical records in health research: a qualitative study in Ireland.Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients.Patient preferences toward an interactive e-consent application for research using electronic health records.The research participant perspective related to the conduct of genomic cohort studies: A systematic review of the quantitative literature.Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens' Juries.

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P2860

Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

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Cathy Charles

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David Northrup

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Donald J Willison

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Julia Abelson

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Marilyn Swinton

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P2860

DNA databanks and consent: a suggested policy option involving an authorization model

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.

Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.

National survey of British public's views on use of identifiable medical data by the National Cancer Registry.

Variation in recruitment across sites in a consent-based clinical data registry: lessons from the Canadian Stroke Network

Consent for the use of personal medical data in research.

Trends in collection, use and disclosure of personal information in contemporary health research: challenges for research governance.

One-time general consent for research on biological samples

Informed consent for research and authorization under the Health Insurance Portability and Accountability Act Privacy Rule: an integrated approach.

The use of medical records in research: what do patients want?

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706-712

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10.1197/JAMIA.M2457

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6

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14

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17712084

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informed consent

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2213476

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