Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks.
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European Reference networks for rare diseases: what is the conceptual framework?The health and life path of rare disease patients: results of the 2015 French barometer.Health Systems Sustainability and Rare Diseases.Transposition and implementation of EU rare disease policy in Eastern Europe.Orphan drug policies and use in pediatric nephrology.
P2860
Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks.
description
2016 nî lūn-bûn
@nan
2016年の論文
@ja
2016年論文
@yue
2016年論文
@zh-hant
2016年論文
@zh-hk
2016年論文
@zh-mo
2016年論文
@zh-tw
2016年论文
@wuu
2016年论文
@zh
2016年论文
@zh-cn
name
Position statement on the role ...... n European Reference Networks.
@ast
Position statement on the role ...... n European Reference Networks.
@en
type
label
Position statement on the role ...... n European Reference Networks.
@ast
Position statement on the role ...... n European Reference Networks.
@en
prefLabel
Position statement on the role ...... n European Reference Networks.
@ast
Position statement on the role ...... n European Reference Networks.
@en
P2093
P2860
P50
P1476
Position statement on the role ...... in European Reference Networks
@en
P2093
Bruno Bembi
Bwee Tien Poll-The
Carla E M Hollak
Dries Dobbelaere
Eileen Treacy
Eva Morava
Gabor Linthorst
Hanka Dekker
Janneke G Langendonk
Johannes Zschocke
P2860
P2888
P356
10.1186/S13023-016-0383-5
P577
2016-01-25T00:00:00Z
P5875
P6179
1031111935