The internet user profile of Italian families of patients with rare diseases: a web survey.
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Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer supportWeb search behavior and information needs of people with multiple sclerosis: focus group study and analysis of online postingsPortal for Families Overcoming Neurodevelopmental Disorders (PFOND): Implementation of a Software Framework for Facilitated Community Website Creation by Nontechnical VolunteersUsing the internet to seek information about genetic and rare diseases: a case study comparing data from 2006 and 2011Social media methods for studying rare diseasesCharacteristics and information searched for by French patients with systemic lupus erythematosus: A web-community data-driven online survey.Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents' Web Information Needs.Internet and social network users' profiles in Renal Transplant Recipients in France.The Role of Solidarity(-ies) in Rare Diseases Research.Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians.The Use of Online Health Forums by Patients With Chronic Cough: Qualitative Study.Bridging the Gap between Health and Social Care for Rare Diseases: Key Issues and Innovative Solutions.General and Health Information Challenges of Patients With Rare Diseases: The Importance of Health Information Provision and Web Sites for Locating Rare Disease Resources
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P2860
The internet user profile of Italian families of patients with rare diseases: a web survey.
description
2013 nî lūn-bûn
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2013年の論文
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2013年論文
@yue
2013年論文
@zh-hant
2013年論文
@zh-hk
2013年論文
@zh-mo
2013年論文
@zh-tw
2013年论文
@wuu
2013年论文
@zh
2013年论文
@zh-cn
name
The internet user profile of I ...... h rare diseases: a web survey.
@en
type
label
The internet user profile of I ...... h rare diseases: a web survey.
@en
prefLabel
The internet user profile of I ...... h rare diseases: a web survey.
@en
P2093
P2860
P50
P356
P1476
The internet user profile of I ...... th rare diseases: a web survey
@en
P2093
Eleonora Agricola
Michaela Gonfiantini
Rita Mingarelli
P2860
P2888
P356
10.1186/1750-1172-8-76
P577
2013-05-16T00:00:00Z
P5875
P6179
1029407873