The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.
about
Importance of an International Registry for and Collaborative Research on Esophageal Atresia.From promising molecules to orphan drugs: Early clinical drug developmentExploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development.Creating a multi-center rare disease consortium - the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR).Mitochondrial disease patient motivations and barriers to participate in clinical trials.From scientific discovery to treatments for rare diseases - the view from the National Center for Advancing Translational Sciences - Office of Rare Diseases Research
P2860
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P2860
The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.
description
2016 nî lūn-bûn
@nan
2016年の論文
@ja
2016年論文
@yue
2016年論文
@zh-hant
2016年論文
@zh-hk
2016年論文
@zh-mo
2016年論文
@zh-tw
2016年论文
@wuu
2016年论文
@zh
2016年论文
@zh-cn
name
The partnership of patient adv ...... ses clinical research network.
@en
type
label
The partnership of patient adv ...... ses clinical research network.
@en
prefLabel
The partnership of patient adv ...... ses clinical research network.
@en
P2093
P2860
P1476
The partnership of patient adv ...... ses clinical research network.
@en
P2093
David Robertson
H A Jinnah
Jeffrey P Krischer
Michele Manion
Peter A Merkel
Rare Diseases Clinical Research Network
Rashmi Gopal-Srivastava
Stephen Groft
P2860
P2888
P356
10.1186/S13023-016-0445-8
P577
2016-05-18T00:00:00Z
P6179
1052294625