The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.

The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.

Item
http://www.wikidata.org/entity/Q36911201
Importance of an International Registry for and Collaborative Research on Esophageal Atresia.From promising molecules to orphan drugs: Early clinical drug developmentExploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development.Creating a multi-center rare disease consortium - the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR).Mitochondrial disease patient motivations and barriers to participate in clinical trials.From scientific discovery to treatments for rare diseases - the view from the National Center for Advancing Translational Sciences - Office of Rare Diseases Research
P2860

The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.

Item
http://www.wikidata.org/entity/Q36911201
description
2016 nî lūn-bûn
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2016年の論文
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2016年論文
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2016年論文
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2016年論文
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2016年論文
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2016年論文
@zh-tw
2016年论文
@wuu
2016年论文
@zh
2016年论文
@zh-cn
name
The partnership of patient adv ...... ses clinical research network.
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type
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The partnership of patient adv ...... ses clinical research network.
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The partnership of patient adv ...... ses clinical research network.
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The partnership of patient adv ...... ses clinical research network.
@en
P2093
P2860
P2888
P304
P31
P356
P433
P478
P577
P6179
P698
P921
P932