Mucopolysaccharidosis I; Parental beliefs about the impact of disease on the quality of life of their children. - Wikidata - wikimedia - TriplyDB

Mucopolysaccharidosis I; Parental beliefs about the impact of disease on the quality of life of their children.

Mucopolysaccharidosis I; Parental beliefs about the impact of disease on the quality of life of their children.

http://www.wikidata.org/entity/Q37089858

about

Parents' experiences of living with, and caring for children, adolescents and young adults with Mucopolysaccharidosis (MPS).Experiences of caregivers of children with inherited metabolic diseases: a qualitative study.Health-Related Quality of Life Is Severely Affected in Primary Orthostatic Tremor.

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P2860

Mucopolysaccharidosis I; Parental beliefs about the impact of disease on the quality of life of their children.

http://www.wikidata.org/entity/Q37089858

description

article científic

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article scientifique

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articolo scientifico

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artigo científico

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bilimsel makale

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scientific article published on 12 July 2016

@en

vedecký článok

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vetenskaplig artikel

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videnskabelig artikel

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vědecký článek

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name

Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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S13023-016-0478-Z

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Orphanet Journal of Rare Diseases

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Mucopolysaccharidosis I; Paren ...... ity of life of their children.

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A Soni-Jaiswal

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J Mercer

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P Callery

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P2860

Enzyme replacement therapy and/or hematopoietic stem cell transplantation at diagnosis in patients with mucopolysaccharidosis type I: results of a European consensus procedure.

A critical appraisal of the quality of quality-of-life measurements.

Can parents rate their child's health-related quality of life? Results of a systematic review.

Prevalence of lysosomal storage disorders.

The prevalence of and survival in Mucopolysaccharidosis I: Hurler, Hurler-Scheie and Scheie syndromes in the UK

Sleep disordered breathing in mucopolysaccharidosis I: a multivariate analysis of patient, therapeutic and metabolic correlators modifying long term clinical outcome.

Pediatric obstructive sleep apnea and quality of life: a meta-analysis.

Mucopolysaccharidosis I: management and treatment guidelines.

Airway management in children with mucopolysaccharidoses.

Sleep-related breathing in children with mucopolysaccharidosis.

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s13023-016-0478-z

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quality of life

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