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Huntington disease: families' experiences of healthcare services

Huntington disease: families' experiences of healthcare services

http://www.wikidata.org/entity/Q37253562

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Palliative Care in Huntington Disease: Personal Reflections and a Review of the Literature Family carer personal concerns in Huntington disease.Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases.Development of the HD-Teen Inventory.Therapy in Huntington's disease: where are we?Healthcare experiences of families affected by Huntington disease: need for improved care.Family caregivers' views on coordination of care in Huntington's disease: a qualitative study.Further evidence of reliability and validity of the Huntington's disease quality of life battery for carers: Italian and French translations.Care of patients with Huntington's disease in South America: a survey.'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients.

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P2860

Huntington disease: families' experiences of healthcare services

http://www.wikidata.org/entity/Q37253562

description

article científic

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article scientifique

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articolo scientifico

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artigo científico

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bilimsel makale

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scientific article published on March 2010

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vedecký článok

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vetenskaplig artikel

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videnskabelig artikel

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vědecký článek

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name

Huntington disease: families' experiences of healthcare services

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Huntington disease: families' experiences of healthcare services.

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Huntington disease: families' experiences of healthcare services

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Huntington disease: families' experiences of healthcare services.

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Huntington disease: families' experiences of healthcare services

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Huntington disease: families' experiences of healthcare services.

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J.1365-2648.2009.05217.X

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Journal of Advanced Nursing

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Huntington disease: families' experiences of healthcare services

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J Jackson Barnette

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P2860

Cognitive interviewing: verbal data in the design and pretesting of questionnaires.

Predictive testing for Huntington's disease.

Legal update: living with the Genetic Information Nondiscrimination Act

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

Caregiving by teens for family members with Huntington disease.

Addressing the health disadvantage of rural populations: how does epidemiological evidence inform rural health policies and research?

The emotional experiences of family carers in Huntington disease.

Using research to develop care for patients with Huntington's disease.

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease.

The US health care system: Part 1: Our current system.

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500-510

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Heather Skirton

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Jane S. Paulsen

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Huntington disease

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