Genetic risk communication: experiences of adolescent girls and young women from families with fragile X syndrome.
about
"How should I tell my child?" Disclosing the diagnosis of sex chromosome aneuploidies.Parents' and children's communication about genetic risk: a qualitative study, learning from families' experiences.A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders.Influence of genetic risk information on parental role identity in adolescent girls and young women from families with fragile X syndromeAssessment of parental disclosure of a 22q11.2 deletion syndrome diagnosis and implications for clinicians.Communication of genetic risk information to daughters in families with fragile X syndrome: the parent's perspectiveDeveloping an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery.Developmental and behavioral pediatricians' attitudes toward screening for fragile X.A systematic review of population screening for fragile X syndrome.Parents' communication with siblings of children affected by an inherited genetic condition.'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.Family Communication and Cascade Testing for Fragile X Syndrome.Exploring the Discussion of Risk of Sudden Cardiac Death.Experience with genetic counseling: the adolescent perspective.Partnering with parents to disclose Klinefelter syndrome to their child.Barriers in communication and available resources to facilitate conversation about infertility with girls diagnosed with Turner syndrome.The Process of Disclosure: Mothers' Experiences of Communicating X-Linked Carrier Risk Information to At-Risk Daughters.
P2860
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P2860
Genetic risk communication: experiences of adolescent girls and young women from families with fragile X syndrome.
description
article científic
@ca
article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 11 March 2009
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Genetic risk communication: ex ...... ilies with fragile X syndrome.
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Genetic risk communication: ex ...... ilies with fragile X syndrome.
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type
label
Genetic risk communication: ex ...... ilies with fragile X syndrome.
@en
Genetic risk communication: ex ...... ilies with fragile X syndrome.
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prefLabel
Genetic risk communication: ex ...... ilies with fragile X syndrome.
@en
Genetic risk communication: ex ...... ilies with fragile X syndrome.
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P2093
P2860
P1476
Genetic risk communication: ex ...... ilies with fragile X syndrome.
@en
P2093
Allyn McConkie-Rosell
Elizabeth Melvin Heise
Gail A Spiridigliozzi
P2860
P304
P356
10.1007/S10897-009-9215-2
P577
2009-03-11T00:00:00Z