Written informed consent and selection bias in observational studies using medical records: systematic review
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Ethical aspects of registry-based research in the Nordic countriesUnderstanding the global epidemiology of pediatric critical illness: the power, pitfalls, and practicalities of point prevalence studies"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.Mining electronic health records: towards better research applications and clinical careEstablishing the role of honest broker: bridging the gap between protecting personal health data and clinical research efficiencyBig data are coming to psychiatry: a general introductionAnonymising and sharing individual patient dataPatient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UKIncreasing value and reducing waste in biomedical research regulation and managementA Protocol for the secure linking of registries for HPV surveillanceA systematic review of re-identification attacks on health dataConsent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?Genetic data sharing and privacy.Predictors of adolescents' consent to use health records for research and results from data collection in a Swedish twin cohort.The acceptability of conducting data linkage research without obtaining consent: lay people's views and justifications.Detecting referral and selection bias by the anonymous linkage of practice, hospital and clinic data using Secure and Private Record Linkage (SAPREL): case study from the evaluation of the Improved Access to Psychological Therapy (IAPT) serviceConsenting to health record linkage: evidence from a multi-purpose longitudinal survey of a general populationObservational research with adolescents: a framework for the management of the parental permissionParticipant recruitment in sensitive surveys: a comparative trial of 'opt in' versus 'opt out' approachesInformed consent, big data, and the oxymoron of research that is not research.Principles of human subjects protections applied in an opt-out, de-identified biobank.The evidence for treating hypertension in older people with dementia: a systematic review.Methods for the de-identification of electronic health records for genomic researchAssessing generalisability through the use of disease registers: findings from a diabetes cohort studyEthics and privacy issues of a practice-based surveillance system: need for a national-level institutional research ethics board and consent standardsA cross-sectional pilot study to investigate patient attitudes and perception regarding the use of real time digital recording of urological procedures for research and teaching purposes.Gay and Bisexual Men's Perceptions of the Donation and Use of Human Biological Samples for Research: A Qualitative Study.Ethical oversight in quality improvement and quality improvement research: new approaches to promote a learning health care systemA telephone survey of factors affecting willingness to participate in health research surveysProfessionally designed information materials and telephone reminders improved consent response rates: evidence from an RCT nested within a cohort study.A Randomised Controlled Trial of Consent Procedures for the Use of Residual Tissues for Medical Research: Preferences of and Implications for Patients, Research and Clinical Practice.Human Papilloma Virus (HPV) Oral Prevalence in Scotland (HOPSCOTCH): A Feasibility Study in Dental Settings.Facilitating the ethical use of health data for the benefit of society: electronic health records, consent and the duty of easy rescue.Predictable and SuStainable Implementation of National Cardiovascular Registries (PASSION) infrastructure: A think tank report from Medical Device Epidemiological Network Initiative (MDEpiNet)Vasectomy and the risk of prostate cancer: a meta-analysis of cohort studies.Stroke Treatment Associated with Rehabilitation Therapy and Transcranial DC Stimulation (START-tDCS): a study protocol for a randomized controlled trial.Volunteer bias in recruitment, retention, and blood sample donation in a randomised controlled trial involving mothers and their children at six months and two years: a longitudinal analysis.LINKING SURVEY AND ADMINISTRATIVE RECORDS: MECHANISMS OF CONSENTWaiver of consent in noninterventional, observational emergency research: the PROMMTT experience.Joint replacement recipients' views about health information privacy.
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P2860
Written informed consent and selection bias in observational studies using medical records: systematic review
description
article científic
@ca
article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
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scientific article published on 12 March 2009
@en
vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Written informed consent and s ...... cal records: systematic review
@en
Written informed consent and s ...... al records: systematic review.
@nl
type
label
Written informed consent and s ...... cal records: systematic review
@en
Written informed consent and s ...... al records: systematic review.
@nl
prefLabel
Written informed consent and s ...... cal records: systematic review
@en
Written informed consent and s ...... al records: systematic review.
@nl
P2093
P2860
P921
P356
P1433
P1476
Written informed consent and s ...... cal records: systematic review
@en
P2093
Deborah J Cook
Donald J Willison
Melissa C Brouwers
P2860
P356
10.1136/BMJ.B866
P407
P577
2009-03-12T00:00:00Z