Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients. - Wikidata - wikimedia - TriplyDB

Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients.

Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients.

http://www.wikidata.org/entity/Q37437823

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Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1.Primary Ciliary Dyskinesia: Ready for Quality of Life Assessment

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Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients.

http://www.wikidata.org/entity/Q37437823

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article científic

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artigo científico

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bilimsel makale

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scientific article published on 27 July 2016

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vedecký článok

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vetenskaplig artikel

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videnskabelig artikel

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vědecký článek

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Primary Ciliary Dyskinesia: Fi ...... asures for Pediatric Patients.

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Primary Ciliary Dyskinesia: Fi ...... asures for Pediatric Patients.

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Primary Ciliary Dyskinesia: Fi ...... asures for Pediatric Patients.

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Primary Ciliary Dyskinesia: Fi ...... asures for Pediatric Patients.

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Primary Ciliary Dyskinesia: Fi ...... asures for Pediatric Patients.

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ANNALSATS.201603-198OC

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Proceedings of the American Thoracic Society

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Primary Ciliary Dyskinesia: Fi ...... asures for Pediatric Patients.

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Adrianne Alpern

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Alexandra L Quittner

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Anjana M Morris

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Audrey DunnGalvin

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Claire Hogg

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Laura Behan

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Margaret W Leigh

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Michael R Knowles

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Thomas W Ferkol

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Inhaled Aztreonam Lysine for Chronic Airway Pseudomonas aeruginosa in Cystic Fibrosis

Diagnosis, monitoring, and treatment of primary ciliary dyskinesia: PCD foundation consensus recommendations based on state of the art review

A quality-of-life measure for adults with primary ciliary dyskinesia: QOL-PCD

Health-related quality of life (HR-QOL) and regulatory issues. An assessment of the European Agency for the Evaluation of Medicinal Products (EMEA) recommendations on the use of HR-QOL measures in drug approval.

Clinical features of childhood primary ciliary dyskinesia by genotype and ultrastructural phenotype

Measuring treatment impact: a review of patient-reported outcomes and other efficacy endpoints in approved product labels.

Patient-reported outcomes in cystic fibrosis

Consensus methods for medical and health services research.

Systematic review of health-related quality of life measures for children with respiratory conditions.

Primary ciliary dyskinesia. Recent advances in diagnostics, genetics, and characterization of clinical disease

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1726-1735

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10.1513/ANNALSATS.201603-198OC

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quality of life

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