To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
about
Incidental Findings with Genomic Testing: Implications for Genetic Counseling PracticeConnecting the CNTNAP2 Networks with Neurodevelopmental DisordersObtaining informed consent for genomics research in Africa: analysis of H3Africa consent documentsReturning pleiotropic results from genetic testing to patients and research participants.The implications of familial incidental findings from exome sequencing: the NIH Undiagnosed Diseases Program experienceSystematic and transparent inclusion of ethical issues and recommendations in clinical practice guidelines: a six-step approachComprehensive gene panels provide advantages over clinical exome sequencing for Mendelian diseases.Findings made in gene panel to whole genome sequencing: data, knowledge, ethics - and consequences?Self-guided management of exome and whole-genome sequencing results: changing the results return model.Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey studyAttitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.Clinical genome sequencing and population preferences for information about 'incidental' findings-From medically actionable genes (MAGs) to patient actionable genes (PAGs)Models of consent to return of incidental findings in genomic researchMolecular genetic testing and the future of clinical genomics.Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and processDid we describe what you meant? Findings and methodological discussion of an empirical validation study for a systematic review of reasons.A protocol for the identification and validation of novel genetic causes of kidney diseaseSo rare we need to hunt for them: reframing the ethical debate on incidental findings.Utility of next generation sequencing in clinical primary immunodeficiencies.Research participants in NGS studies want to know about incidental findingsCurrent state of ethics literature synthesis: a systematic review of reviewsPhysicians' perspectives on the uncertainties and implications of chromosomal microarray testing of children and familiesCompare and contrast: a cross-national study across UK, USA and Greek experts regarding return of incidental findings from clinical sequencingEthical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research.Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.An old problem in a new age: Revisiting the clinical dilemma of misattributed paternity.Incidental variants are critical for genomicsA closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairsIncidental findings in the era of whole genome sequencing?Disclosure of research results: a randomized study on GENEPSO-PS cohort participants.A qualitative study of healthcare providers' perspectives on the implications of genome-wide testing in pediatric clinical practice.Returning genome sequences to research participants: Policy and practice.Molecular genetics research in ADHD: ethical considerations concerning patients' benefit and resource allocation.Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?Incidental findings from clinical genome-wide sequencing: a review.Best practice guidelines for the use of next-generation sequencing applications in genome diagnostics: a national collaborative study of Dutch genome diagnostic laboratories.Next-generation sequencing for research and diagnostics in kidney disease.Defining and managing incidental findings in genetic and genomic practice.Incidental findings: the time is not yet ripe for a policy for biobanksLegal & ethical compliance when sharing biospecimen.
P2860
Q26777211-4D78D8C0-7C1E-4368-9364-160C3E1CB1E1Q28086930-A47A0A8A-41D7-4062-93E3-5B837AFB7DECQ28600834-AAAD75F9-161B-4D7F-A1DA-08A3116D3F3EQ30575451-7F3C8EB4-8194-4370-9479-FB82B61856BFQ30590291-6405F94F-CEE4-4CA3-923A-22B138DAEC92Q30607861-A158C9E8-5B04-423E-B4B0-C80C8F88D9A0Q30657467-33712B13-31A9-487E-A08E-C09820A1542FQ31114379-3395BA8F-2A76-4421-A4ED-C1CCD7994576Q33566296-FAE56919-F8AA-4ECF-89B7-A1FEFD5517BDQ33830867-09A04814-ECA9-4F42-BE00-F453DCED3374Q33858610-1FD3BA3C-CCA9-4892-BE44-4CD6E383D2C0Q33865515-0B671690-7A0D-408D-AC10-674A6D2C4C7CQ33934216-B3583CD4-DA1C-4DE4-981F-AA9B670DFC9DQ34345162-419E299E-B332-445B-A01D-15A09B47A55DQ34549035-2571D0ED-0DAC-4742-AC4D-BA10F4C28FC2Q35282065-9A49473D-4E78-48D5-A69D-CD1BDC2517B0Q35776875-F95A0599-8A4A-4057-9CB5-662BA24EE26CQ35902802-D4739CD9-EF00-4511-B3E3-0AC6AA9CF14CQ36091999-7B2B0A1D-54D6-41F7-B44A-FB700C2645F6Q36116704-B7C67F85-1270-437F-9090-4C0B937F8637Q36157275-DEE9C4CE-D594-4DE7-8F9E-B1631EC00F58Q36481170-8419E8ED-D34C-4B2F-8F03-55BC77BC02FAQ36585040-5418DE2F-A476-452D-B5A6-D14207DC156DQ36590467-934F6DB4-4659-4A1E-9C0F-6AADF3C04601Q36695880-400A3ED6-29AE-4187-9D12-5477820EBF3BQ36699756-687F400C-F47F-4D96-A07A-3D98DC507432Q36817320-35AD255A-DAC8-4636-9CB5-3F55949BA2DAQ36983135-404C8D8F-9032-4777-A8C7-3D31DCF8EF24Q37156528-8ED0345D-B38B-4CE5-9902-F4A822863260Q37320500-FF4D609C-B99F-4A23-9D9E-4DC249E0936DQ37639015-21C5552D-0F76-4160-9F85-A6C7477908C2Q37701935-3891F528-CC9B-4BE2-98C0-D567D6017071Q38054630-434ED23A-0C6B-42D4-8B2A-B5D46946B49FQ38072659-553B776E-6EA4-4179-9D66-A0CDEDA25286Q38109552-5DCD7CAC-7859-465C-A71F-F7C1A3977163Q38115273-1786CDA3-1F2B-474A-A757-DD3550B18DE7Q38219045-5BBD67C4-15BD-4B32-9143-3B64A23AD78DQ38250263-E2B87019-56FB-4AA9-9A99-EA0FED766719Q38271649-77C89F4F-3BAA-46EC-86B1-43959C391403Q38371032-D9E0DAFA-DD92-4866-9FD9-AC534FF0D9CE
P2860
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
description
article científic
@ca
article scientifique
@fr
articol științific
@ro
articolo scientifico
@it
artigo científico
@gl
artigo científico
@pt
artigo científico
@pt-br
artikel ilmiah
@id
artikull shkencor
@sq
artículo científico
@es
name
To tell or not to tell? A syst ...... arising in genetics contexts.
@en
type
label
To tell or not to tell? A syst ...... arising in genetics contexts.
@en
prefLabel
To tell or not to tell? A syst ...... arising in genetics contexts.
@en
P2860
P356
P1476
To tell or not to tell? A syst ...... s arising in genetics contexts
@en
P2093
Gabrielle M Christenhusz
Koenraad Devriendt
P2860
P2888
P304
P356
10.1038/EJHG.2012.130
P577
2012-06-27T00:00:00Z