Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
about
Genetic studies of quantitative MCI and AD phenotypes in ADNI: Progress, opportunities, and plansGenetic research on biospecimens poses minimal riskBiobanks and personalized medicineAttitudes towards the sharing of genetic information with at-risk relatives: results of a quantitative surveyFeedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?Ethical issues in consumer genome sequencing: Use of consumers' samples and dataPractical guidance on informed consent for pediatric participants in a biorepositoryEvaluating the consent preferences of UK research volunteers for genetic and clinical studiesRecommendations from the international stroke genetics consortium, part 1: standardized phenotypic data collectionLessons Learned From Newborn Screening for Critical Congenital Heart Defects.Evolution of universal review and disclosure of MRI reports to research participantsLost in translation: returning germline genetic results in genome-scale cancer researchDiscovery and informing research participants of incidental findings detected in brain magnetic resonance imaging studies: Review and multi-institutional studyThe ethics of how to manage incidental findings.An Official American Thoracic Society Research Statement: A Research Framework for Pulmonary Nodule Evaluation and Management.Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.To disclose, or not to disclose? Context matters.Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.Return of genomic results to research participants: the floor, the ceiling, and the choices in between.A framework for analyzing the ethics of disclosing genetic research findings.Return of Results from Genomic Sequencing: A Policy Discussion of Secondary Findings for Cancer Predisposition.Clinical Management of Pediatric Genomic Testing.Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.Newborn Sequencing in Genomic Medicine and Public Health.The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.Living laboratory: whole-genome sequencing as a learning healthcare enterprise.The fiduciary relationship model for managing clinical genomic "incidental" findings.Distress and patient-centered communication among veterans with incidental (not screen-detected) pulmonary nodules. A cohort study.An implementation framework for the feedback of individual research results and incidental findings in researchManaging the Ethical Issues of Genomic Research using Pathology Specimens.Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health Technology.Researchers' views on informed consent for return of secondary results in genomic research.Identification of Medically Actionable Secondary Findings in the 1000 Genomes.When Should Genome Researchers Disclose Misattributed Parentage?Secondary findings and carrier test frequencies in a large multiethnic sample.Cancer susceptibility syndromes in children in the area of broad clinical use of massive parallel sequencing.'I still don't know diddly': a longitudinal qualitative study of patients' knowledge and distress while undergoing evaluation of incidental pulmonary nodulesA Clinical Service to Support the Return of Secondary Genomic Findings in Human Research.Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families
P2860
Q26801647-2BBB97D4-737B-4E78-8BE4-5452C0866E92Q26829694-28E993A8-EB53-40F8-9E8E-C5A395901321Q26866132-69BA3338-9A39-4AC6-B464-8A978A66EE13Q27320580-D40F30FC-011A-41CB-BE09-4A411196CBEEQ28601041-4678ADAB-DCBC-4937-97C7-4D8969E66AEEQ28602462-B17F3DDC-C4FD-4990-85B8-C0204651658FQ28650458-C6985163-B58B-47E2-943F-74F5B48FEAB7Q28652534-4E7D0A33-BEBD-46BD-B050-C8EC5FCCB895Q30301140-80E2B2E2-DA59-4D6E-965D-B060C27ABAD0Q30834699-F55E1E4E-E3BE-4683-8C68-BCC04DE5CCDEQ31047789-C9CCA0D0-3FC2-4E6C-8391-51BB5622150EQ33613050-45FDDC7D-7365-417E-B460-EC13D9658755Q33695290-4B1C1C91-83FA-4202-B1C8-14347B4D432FQ33728442-EBD38FF5-FAE2-4961-A79E-7D371E15DCB4Q33735718-6F45FDFB-D69C-4047-9480-94D56C2B1DABQ33737044-3E3963E5-36DD-446D-BCB2-48CFF1307545Q33774038-6567C438-0161-475D-B37D-DC05054E2A77Q33858610-53F1F282-56CB-4A74-A376-284F44E9E710Q34000877-B439AFE2-8B77-4F56-B77C-3A276C504D1BQ34081010-3133E503-CEC4-45CD-8EB7-69C812356D07Q34175764-0B417349-99A0-4523-AED6-62F91D8B9A6FQ34482764-9116073E-CF4F-4A3D-B7FC-6A896E5FB943Q34483451-627E0B23-AF82-4202-883A-D91003218904Q34544874-7A8D0456-97C9-4CED-84C6-9436F97171ABQ34549504-39BB831E-CA91-42A5-8EBF-1F9067A8F402Q34676011-E753D209-486A-424B-9ED5-52735A3CA759Q34995956-2765BC8A-B520-467C-B12D-8FA162CF7475Q35034175-F775578D-2CDE-49B7-AA94-E5C9BF1DB18BQ35127892-5B404D1F-9B55-48F1-88E7-7C6E987EC708Q35341406-85BCD0E0-37BD-42BB-A1D2-CBD31A6A8815Q35482477-C427D88E-1E5C-4359-997E-7B8EF1058A3CQ35695017-C5DF494F-4E30-4C49-9EF3-2D1959ABD35EQ35736236-AA086634-ACF6-4480-8AB6-25066CB95351Q35762437-AD957FC2-D6CF-47CF-BD83-8425271099A8Q35836434-08C99E12-E4A2-4072-A40E-9186AD15464EQ35865955-DDD1C842-C4B7-4924-A53E-D978F1C55CB1Q35894536-984030EE-CEB1-4457-813B-D71F0BAE7EAEQ35939391-130DE2E1-DC6D-4666-8A84-0ED82835914CQ35945780-BEA4E0F5-6CB0-4F09-9AE2-3686E661D049Q36197067-27BFBE88-BC3F-49F4-A11C-48C7819CC35E
P2860
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
description
2014 nî lūn-bûn
@nan
2014年の論文
@ja
2014年学术文章
@wuu
2014年学术文章
@zh-cn
2014年学术文章
@zh-hans
2014年学术文章
@zh-my
2014年学术文章
@zh-sg
2014年學術文章
@yue
2014年學術文章
@zh
2014年學術文章
@zh-hant
name
Anticipate and communicate: Et ...... e Study of Bioethical Issues).
@en
type
label
Anticipate and communicate: Et ...... e Study of Bioethical Issues).
@en
prefLabel
Anticipate and communicate: Et ...... e Study of Bioethical Issues).
@en
P356
P1476
Anticipate and communicate: Et ...... e Study of Bioethical Issues).
@en
P2093
Christine Weiner
P304
P356
10.1093/AJE/KWU217
P407
P577
2014-08-22T00:00:00Z