A tiered-layered-staged model for informed consent in personal genome testing.
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Is it ethical to prevent secondary use of stored biological samples and data derived from consenting research participants? The case of Malawi.Design and implementation of a randomized controlled trial of genomic counseling for patients with chronic disease.Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencingModels of consent to return of incidental findings in genomic researchMeasuring informed choice in population-based reproductive genetic screening: a systematic review.It is time to take timing seriously in clinical genetics.Multiplex genetic testing: reconsidering utility and informed consent in the era of next-generation sequencingDevelopment of a tiered and binned genetic counseling model for informed consent in the era of multiplex testing for cancer susceptibilityDirect-to-Consumer Genetic Testing and Personal Genomics Services: A Review of Recent Empirical StudiesInformed consent for return of incidental findings in genomic research.Interactive e-counselling for genetics pre-test decisions: where are we now?Healthcare professionals' and patients' perspectives on consent to clinical genetic testing: moving towards a more relational approach.Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.A review of consent practices and perspectives for pharmacogenetic testingComparison of Informed Consent Preferences for Multiplex Genetic Carrier Screening among a Diverse Population.Pre- and post-testing counseling considerations for the provision of expanded carrier screening: exploration of European geneticists' viewsParents' Perspectives on Supporting Their Decision Making in Genome-Wide Sequencing.Biomedical Big Data: New Models of Control Over Access, Use and Governance.An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots.Preferences for learning different types of genome sequencing results among young breast cancer patients: Role of psychological and clinical factors.Response to Open Peer Commentaries on "Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice".Consent to epistemic interventions: a contribution to the debate on the right (not) to know.Amniocentesis is still the best option for advanced genomic testing in case of fetal malformations.Choosing between Higher and Lower Resolution Microarrays: do Pregnant Women Have Sufficient Knowledge to Make Informed Choices Consistent with their Attitude?Physicians Must Discuss Potential Long-Term Risks of Fecal Microbiota Transplantation to Ensure Informed Consent.Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies.Incidental or secondary findings: an integrative and patient-inclusive approach to the current debateA mobile revolution for healthcare? Setting the agenda for bioethicsContextualizing Genetic Testing and Sequencing Results for Patients and Parents: The Need for Empirical-Ethical Research
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A tiered-layered-staged model for informed consent in personal genome testing.
description
2012 nî lūn-bûn
@nan
2012年の論文
@ja
2012年学术文章
@wuu
2012年学术文章
@zh-cn
2012年学术文章
@zh-hans
2012年学术文章
@zh-my
2012年学术文章
@zh-sg
2012年學術文章
@yue
2012年學術文章
@zh
2012年學術文章
@zh-hant
name
A tiered-layered-staged model for informed consent in personal genome testing.
@en
type
label
A tiered-layered-staged model for informed consent in personal genome testing.
@en
prefLabel
A tiered-layered-staged model for informed consent in personal genome testing.
@en
P2860
P50
P356
P1476
A tiered-layered-staged model for informed consent in personal genome testing
@en
P2093
Maartje H N Schermer
P2860
P2888
P304
P356
10.1038/EJHG.2012.237
P577
2012-11-21T00:00:00Z
P5875
P6179
1022802603