Drafting the Genetic Privacy Act: science, policy, and practical considerations.
about
Ethical and methodological issues in pedigree stroke research.Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective.Public preferences about secondary uses of electronic health information.The Genetic Privacy Act: an analysis of privacy and research concerns.Genetic research with stored biological materials: ethics and practice.Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.Privacy and ethics in pediatric environmental health research-part I: genetic and prenatal testing.Privacy and ethics in pediatric environmental health research-part II: protecting families and communities.Human rights and genetic discrimination: protecting genomics' promise for public health.Ethics in prevention science involving genetic testingDoes it make sense to speak of neuroethics? Three problems with keying ethics to hot new science and technologyNursing advocacy in a postgenomic age.Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.Regulating genetic privacy in the online health information era.Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Ethical and legal issues in the procurement, storage and use of DNA.Privacy issues in personalized medicine.The limits of sharing: an ethical analysis of the arguments for and against the sharing of databases and material banks.The Australian joint inquiry into the Protection of Human Genetic Information.Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.
P2860
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P2860
Drafting the Genetic Privacy Act: science, policy, and practical considerations.
description
1995 nî lūn-bûn
@nan
1995年の論文
@ja
1995年論文
@yue
1995年論文
@zh-hant
1995年論文
@zh-hk
1995年論文
@zh-mo
1995年論文
@zh-tw
1995年论文
@wuu
1995年论文
@zh
1995年论文
@zh-cn
name
Drafting the Genetic Privacy Act: science, policy, and practical considerations.
@en
type
label
Drafting the Genetic Privacy Act: science, policy, and practical considerations.
@en
prefLabel
Drafting the Genetic Privacy Act: science, policy, and practical considerations.
@en
P1476
Drafting the Genetic Privacy Act: science, policy, and practical considerations
@en
P2093
P2860
P304
P356
10.1111/J.1748-720X.1995.TB01378.X
P50
P577
1995-01-01T00:00:00Z