Health-related quality of life measures in genetic disorders: an outcome variable for consideration in clinical trials
about
Costello and cardio-facio-cutaneous syndromes: Moving toward clinical trials in RASopathies.Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcomeExome sequencing can improve diagnosis and alter patient management.Phase 2 randomized, flexible crossover, double-blinded, placebo-controlled trial of the farnesyltransferase inhibitor tipifarnib in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas.Exploring quality of life in Italian patients with rare disease: a computer-aided content analysis of illness stories.How much disability is caused by fibrofolliculomas during Birt-Hogg-Dubé Syndrome?The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services.Quality of life in rare genetic conditions: a systematic review of the literature.
P2860
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P2860
Health-related quality of life measures in genetic disorders: an outcome variable for consideration in clinical trials
description
2009 nî lūn-bûn
@nan
2009年の論文
@ja
2009年論文
@yue
2009年論文
@zh-hant
2009年論文
@zh-hk
2009年論文
@zh-mo
2009年論文
@zh-tw
2009年论文
@wuu
2009年论文
@zh
2009年论文
@zh-cn
name
Health-related quality of life ...... nsideration in clinical trials
@en
Health-related quality of life ...... nsideration in clinical trials
@nl
type
label
Health-related quality of life ...... nsideration in clinical trials
@en
Health-related quality of life ...... nsideration in clinical trials
@nl
prefLabel
Health-related quality of life ...... nsideration in clinical trials
@en
Health-related quality of life ...... nsideration in clinical trials
@nl
P2860
P356
P1476
Health-related quality of life ...... nsideration in clinical trials
@en
P2093
David A Stevenson
John C Carey
P2860
P304
P356
10.1002/AJMG.C.30217
P577
2009-08-01T00:00:00Z