Quality of life evaluation in epidermolysis bullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument.
about
Pain and quality of life evaluation in patients with localized epidermolysis bullosa simplex.Colchicine may assist in reducing granulation tissue in junctional epidermolysis bullosa.The Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI): grading disease severity and assessing responsiveness to clinical change in epidermolysis bullosa.Botulinum toxin A injection for chronic anal fissures and anal sphincter spasm improves quality of life in recessive dystrophic epidermolysis bullosa.Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa.Oral health care for patients with epidermolysis bullosa--best clinical practice guidelines.Quality of Life and Economic Burden in Recessive Dystrophic Epidermolysis BullosaPigmented Hair-Thickening Fibers: A Camouflage Technique for Alopecia in Patients with Epidermolysis Bullosa.Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in EuropeQuality of life in patients with bullous dermatoses.Factors affecting quality of life in epidermolysis bullosa.Bone marrow transplantation in epidermolysis bullosa.Evaluation of wound care options in patients with recessive dystrophic epidermolysis bullosa: a costly necessity.Blistering disease: insight from the hemidesmosome and other components of the dermal-epidermal junction.Understanding the outcomes of a home nursing programme for patients with epidermolysis bullosa: an Australian perspective.Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation.Adopting a Sustainable Community of Practice Model when Developing a Service to Support Patients with Epidermolysis Bullosa (EB): A Stakeholder-Centered Approach.Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese.Development and validation of an epidermolysis bullosa family/parental burden score.Hand function and quality of life in children with epidermolysis bullosa.Burden of disease scoring in epidermolysis bullosa.Nutritional outcome in children with severe generalized recessive dystrophic epidermolysis bullosa: a short- and long-term evaluation of gastrostomy and enteral feeding.Psychosocial impact of inherited and autoimmune blistering diseases.
P2860
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P2860
Quality of life evaluation in epidermolysis bullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument.
description
2009 nî lūn-bûn
@nan
2009年の論文
@ja
2009年論文
@yue
2009年論文
@zh-hant
2009年論文
@zh-hk
2009年論文
@zh-mo
2009年論文
@zh-tw
2009年论文
@wuu
2009年论文
@zh
2009年论文
@zh-cn
name
Quality of life evaluation in ...... ic quality of life instrument.
@en
Quality of life evaluation in epidermolysis bullosa
@nl
type
label
Quality of life evaluation in ...... ic quality of life instrument.
@en
Quality of life evaluation in epidermolysis bullosa
@nl
prefLabel
Quality of life evaluation in ...... ic quality of life instrument.
@en
Quality of life evaluation in epidermolysis bullosa
@nl
P2093
P1476
Quality of life evaluation in ...... fic quality of life instrument
@en
P2093
D F Murrell
L K Martin
P304
P356
10.1111/J.1365-2133.2009.09347.X
P407
P50
P577
2009-06-11T00:00:00Z