Quality of life and psychologic adjustment in children and adolescents with early treated phenylketonuria can be normal.
about
Phenylketonuria: translating research into novel therapiesThe Adolescent Adjustment Profile (AAP) in comparisons of patients with obesity, phenylketonuria or neurobehavioural disorders.Methodological challenges in following up patients of a hospital child protection team: is there a recruitment bias?Quality of life, psychological adjustment, and adaptive functioning of patients with intoxication-type inborn errors of metabolism - a systematic reviewHealth-related quality of life in children with newly diagnosed cancer: a one year follow-up study.Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires.Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.Prediction of posttraumatic stress in fathers of children with chronic diseases or unintentional injuries: a six-months follow-up studyEvaluation of quality of life and description of the sociodemographic state in adolescent and young adult patients with phenylketonuria (PKU).Assessment of quality of life of the children and parents affected by inborn errors of metabolism with restricted diet: preliminary results of a cross-sectional study.Longitudinal quality of life analysis in a phenylketonuria cohort provided sapropterin dihydrochloride.Development of the US English version of the phenylketonuria - quality of life (PKU-QOL) questionnaireTetrahydrobiopterin (BH4) in PKU: effect on dietary treatment, metabolic control, and quality of life.Clinical therapeutics for phenylketonuria.Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer.Assessment of quality of life of children and adolescents with cancer during their treatment.The complete European guidelines on phenylketonuria: diagnosis and treatment.Transition of young adults with phenylketonuria from pediatric to adult care.Adolescent perspectives on social support received in the aftermath of sexual abuse: a qualitative study.Health-related quality of life in children and adolescents with phenylketonuria: unimpaired HRQoL in patients but feared school failure in parents.How individuals with phenylketonuria experience their illness: an age-related qualitative study.Autism in Phenylketonuria Patients: From Clinical Presentation to Molecular Defects.Quality of life and adherence to treatment in early-treated Brazilian phenylketonuria pediatric patients.Disclosure of child sexual abuse by adolescents: a qualitative in-depth study.[Quality of life and autism].Health-related quality of life problems of children aged 8-11 years with a chronic disease.The mutual prospective influence of child and parental post-traumatic stress symptoms in pediatric patients.Quality of life in children treated with restrictive diet for inherited metabolic disease.Quality of life in rare genetic conditions: a systematic review of the literature.
P2860
Q27015749-3C8BCA2B-3229-4ABC-9AD7-ED1119880BC8Q33327004-33752DC5-C646-4BD6-A5E8-575E7F28C2F4Q34338365-A5F9E60C-1A84-4012-82B8-5E7262FC1536Q34446836-DE7B381C-3A3D-4B4A-A765-B63A261CA97DQ35065884-8723A172-E5E8-4AD3-83A7-B36C25558C67Q35666961-7A3377C2-63DB-4F14-AFB7-95045976D8F0Q35972805-091DA193-DE90-451A-9BD5-237892F77C0DQ36449341-108CA72E-7CFC-4435-BCA5-99900D9B9B93Q36579169-246C2304-C268-48AE-BE67-57FCFA4C5BA0Q37359818-8ED9A70C-EC5D-4453-8882-1C2794EBF24DQ37434230-FFC3F3C9-71A2-48AA-A6A0-1253505110BFQ37690085-617F62A4-1C46-4B7B-A49D-E4E9727B85EDQ37990774-FBB729D0-F60E-487A-9010-4848F841C7CDQ38383086-A6E02C7F-B388-44C4-B3F6-20628C096979Q39460887-F4D4771D-F3D8-4EB3-A5D1-9E1E98461F44Q39988680-FE316D1B-8A46-47AE-956B-ADC4BB4F23A2Q42376686-91F1A5C7-D9C6-482A-934A-A34065232756Q43851049-259C13B6-6EC3-4CB0-9624-265522829A5AQ44964958-C0314E57-3B0C-424D-A22A-C182782590F9Q45367911-921CA39F-E10B-4643-A17E-B5849ED0BF92Q46077980-8507EA34-C3E8-4C89-BA19-E12C9217F9BCQ46522207-9B79A4FD-7460-4A6B-B3F3-65C0A88F37E2Q47097235-D45B4E5A-425E-4657-A62A-3442EE6FCEE6Q47355172-EAE016E1-DD72-464B-B67F-1DF846765870Q50303548-6BD53877-C320-4751-8991-66D4F6B9103DQ50895397-29BCAB3D-8FFA-4871-BC50-C310BC170E39Q51459029-DFF2EE90-9C8D-4603-8E64-E1F680897F45Q52945311-5375E2A0-78A9-4DD3-BC29-FB8B0523F04DQ53077672-24BE913A-D093-4DD4-8ED7-6656A3F7D395
P2860
Quality of life and psychologic adjustment in children and adolescents with early treated phenylketonuria can be normal.
description
2002 nî lūn-bûn
@nan
2002年の論文
@ja
2002年学术文章
@wuu
2002年学术文章
@zh
2002年学术文章
@zh-cn
2002年学术文章
@zh-hans
2002年学术文章
@zh-my
2002年学术文章
@zh-sg
2002年學術文章
@yue
2002年學術文章
@zh-hant
name
Quality of life and psychologi ...... phenylketonuria can be normal.
@en
Quality of life and psychologi ...... phenylketonuria can be normal.
@nl
type
label
Quality of life and psychologi ...... phenylketonuria can be normal.
@en
Quality of life and psychologi ...... phenylketonuria can be normal.
@nl
prefLabel
Quality of life and psychologi ...... phenylketonuria can be normal.
@en
Quality of life and psychologi ...... phenylketonuria can be normal.
@nl
P921
P356
P1476
Quality of life and psychologi ...... phenylketonuria can be normal.
@en
P2093
Andrea Superti-Furga
Beat Steinmann
P304
P356
10.1067/MPD.2002.123663
P407
P577
2002-05-01T00:00:00Z