Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics.
about
Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: Results from the HERO qualitative study.Associations of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and health care provider services: results in adults with hemophilia in the HERO study.Predictors of quality of life among adolescents and young adults with a bleeding disorderImpact of haemophilia with inhibitors on caregiver burden in the United States.Managing chronic pain in adults with haemophilia: current status and call to action.Challenges in the management of haemophilia on transition from adolescence to adulthood.Medical co-morbidities of patients with haemophilia: pain, obesity and hepatitis C.Psychosocial care for children with haemophilia and their parents in the Netherlands.Prospective evaluation of treatment regimens, efficacy and safety of a recombinant factor VIII concentrate in haemophilia A: the German EffeKt study.Treatment outcomes, quality of life, and impact of hemophilia on young adults (aged 18-30 years) with hemophilia.Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status.Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.The demographics, treatment characteristics and quality of life of adult people with haemophilia in China - results from the HERO study.Effectiveness of two psychological interventions for pain management, emotional regulation and promotion of quality of life among adult Portuguese men with haemophilia (PSY-HaEMOPEQ): study protocol for a single-centre prospective randomised controlReliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study.Haemophilia Experiences, Results and Opportunities (HERO) study: treatment-related characteristics of the population.Pain sensitivity in patients with haemophilia following moderate aerobic exercise intervention.Haemophilia Experiences, Results and Opportunities (HERO) Study: influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia.Evaluating the psychosocial impact of hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.A gap in comprehensive care: Sexual health in men with haemophilia.Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions.Improving comprehensive care in the haemophilia community: building on the HERO Study.
P2860
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P2860
Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics.
description
2013 nî lūn-bûn
@nan
2013年の論文
@ja
2013年学术文章
@wuu
2013年学术文章
@zh
2013年学术文章
@zh-cn
2013年学术文章
@zh-hans
2013年学术文章
@zh-my
2013年学术文章
@zh-sg
2013年學術文章
@yue
2013年學術文章
@zh-hant
name
Haemophilia Experiences, Resul ...... y and population demographics.
@en
Haemophilia Experiences, Resul ...... y and population demographics.
@nl
type
label
Haemophilia Experiences, Resul ...... y and population demographics.
@en
Haemophilia Experiences, Resul ...... y and population demographics.
@nl
prefLabel
Haemophilia Experiences, Resul ...... y and population demographics.
@en
Haemophilia Experiences, Resul ...... y and population demographics.
@nl
P2093
P2860
P356
P1433
P1476
Haemophilia Experiences, Resul ...... y and population demographics.
@en
P2093
P2860
P356
10.1111/HAE.12239
P577
2013-08-01T00:00:00Z