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Between Openness and Privacy in GenomicsEthical Challenges of Big Data in Public Health“We the Scientists”: a Human Right to Citizen ScienceEthical issues in health research with novel online sourcesUse of modern contraception by the poor is falling behindOpen sharing of genomic data: Who does it and why?Ready to put metadata on the post-2015 development agenda? Linking data publications to responsible innovation and science diplomacy.The place of human rights and the common good in global health policy.Opinion: Learning as we go: lessons from the publication of Facebook's social-computing researchKey challenges for next-generation pharmacogenomics: Science & Society series on Science and Drugs.Research led by participants: a new social contract for a new kind of research.Adapting standards: ethical oversight of participant-led health research.Direct-to-consumer genomics on the scales of autonomy.Sharing benefits in international health research. Research-capacity building as an example of an indirect collective benefit.Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine.The dynamics of big data and human rights: the case of scientific research.Attitudes towards personal genomics among older Swiss adults: An exploratory studyFeasibility and safety study of a new device (Odón device) for assisted vaginal deliveries: study protocol.Bernard Lerer: recipient of the 2014 inaugural Werner Kalow Responsible Innovation Prize in Global Omics and Personalized Medicine (Pacific Rim Association for Clinical Pharmacogenetics).Children's rights in pediatrics.Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics.Personal genomics in Greece: an overview of available direct-to-consumer genomic services and the relevant legal framework.Improving the Measurement of Scientific Success by Reporting a Self-Citation IndexAn Appeal to the Global Health Community for a Tripartite Innovation: An "Essential Diagnostics List," "Health in All Policies," and "See-Through 21(st) Century Science and Ethics".Assisted reproductive technologies in developing countries: are we caring yet?Genetic incidental findings: autonomy regained?Regulating genomics: time for a broader vision.The ethics of participant-led biomedical research.Shaping parents: impact of contrasting professional counseling on parents' decision making for children with disorders of sex development.Playing a part in research? University students' attitudes to direct-to-consumer genomics.Biomedical Big Data: New Models of Control Over Access, Use and Governance.The challenge of personal genomics in Germany.What Is Trust? Ethics and Risk Governance in Precision Medicine and Predictive Analytics.A code of ethics for ethicists: what would Pierre Bourdieu say? "Do not misuse social capital in the age of consortia ethics".Digital health: meeting the ethical and policy challenges.Test Pricing and Reimbursement in Genomic Medicine: Towards a General Strategy.Policy implications of big data in the health sector.Big Data and Dementia: Charting the Route Ahead for Research, Ethics, and Policy.Odon device for instrumental vaginal deliveries: results of a medical device pilot clinical study.Informed Consent and the Disclosure of Clinical Results to Research Participants.
P50
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P50
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Swiss-Greek professor of Bioethics
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bioéthicienne greco-suisse
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griechisch-schweizerische Bioethikerin
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onderzoeker
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Effy Vayena
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