Parent or nurse? The experience of being the parent of a technology-dependent child.
about
Fatherhood and children with complex healthcare needs: qualitative study of fathering, caring and parenting.Home mechanical ventilation and specialised health care in the community: Between a rock and a hard place.Using focused ethnography in paediatric settings to explore professionals' and parents' attitudes towards expertise in managing chronic kidney disease stage 3-5"Fighting the system": families caring for ventilator-dependent children and adults with complex health care needs at home.What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?Intense parenting: a qualitative study detailing the experiences of parenting children with complex care needsBalancing biomedical, care, and support needs in the technology dependent child.What e-patients want from the doctor-patient relationship: content analysis of posts on discussion boards.Moving family-centered care forward: Bereaved fathers' perspectivesParents' experiences of living with a child with a long-term condition: a rapid structured review of the literature.Parents' experiences of living with a child with hydrocephalus: a cross-sectional interview-based study.Evaluation of services for children with complex needs: mapping service provision in one NHS Trust.Reconceptualizing children's complex discharge with health systems theory: novel integrative review with embedded expert consultation and theory development.Defining technology dependence in children and adolescents.An integrative review of communication between parents and nurses of hospitalized technology-dependent children.The role of hospice in the transition from hospital to home for technology dependent children - a qualitative study.Home Mechanical Ventilation in Children.Becoming an expert carer: the process of family carers learning to manage technical health procedures at home.Developing a long-term ventilation service in a children's hospice: an illustrative case study.The unique experience of home for parents and carers of children with disabilities."It goes against the grain": A qualitative study of the experiences of parents' administering distressing health-care procedures for their child at home.'Being a presence': The ways in which family support workers encompass, embrace, befriend, accompany and endure with families of life-limited children.Technology-dependent children and the demand for pharmaceutical care.Treatment of hemophilia: A qualitative study of mothers' perspectives.Managing change in the care of children with complex needs: healthcare providers' perspectives.Family members' experiences of everyday life when a child is dependent on a ventilator: a metasynthesis study.Personal care assistants' experiences of caring for people on home mechanical ventilation.(Dis)-Trust in transitioning ventilator-dependent children from hospital to homecare.Paid carers' experiences of caring for mechanically ventilated children at home: implications for services and training.The perceptions and preferences of parents of children with tracheostomies in a study of humidification therapy.The psychosocial experience of parents receiving care closer to home for their ill child.Included but isolated: early intervention programmes provision for children and families with chronic respiratory support needs.The experiences of medically fragile adolescents who require respiratory assistance.Sleeping problems in mothers and fathers of patients suffering from congenital central hypoventilation syndrome.Ventilator-dependent children and the health services system. Unmet needs and coordination of care.Tracheotomy and children with spinal muscular atrophy type 1: ethical considerations in the French context.Solid and liquid modernity: A comparison of the social geography of places to die in the UK and Australia.Parental perspectives on caring for a child with chronic kidney disease: an in-depth interview study.
P2860
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P2860
Parent or nurse? The experience of being the parent of a technology-dependent child.
description
2005 nî lūn-bûn
@nan
2005年の論文
@ja
2005年学术文章
@wuu
2005年学术文章
@zh
2005年学术文章
@zh-cn
2005年学术文章
@zh-hans
2005年学术文章
@zh-my
2005年学术文章
@zh-sg
2005年學術文章
@yue
2005年學術文章
@zh-hant
name
Parent or nurse? The experience of being the parent of a technology-dependent child.
@en
Parent or nurse? The experience of being the parent of a technology-dependent child.
@nl
type
label
Parent or nurse? The experience of being the parent of a technology-dependent child.
@en
Parent or nurse? The experience of being the parent of a technology-dependent child.
@nl
prefLabel
Parent or nurse? The experience of being the parent of a technology-dependent child.
@en
Parent or nurse? The experience of being the parent of a technology-dependent child.
@nl
P1476
Parent or nurse? The experience of being the parent of a technology-dependent child
@en
P2093
Caroline Glendinning
P2860
P304
P356
10.1111/J.1365-2648.2005.03522.X
P407
P577
2005-09-01T00:00:00Z