about
Becoming pregnant: exploring the perspectives of women living with diabetesThe Warwick Patient Experiences Framework: patient-based evidence in clinical guidelines.The role of experiential knowledge within attitudes towards genetic carrier screening: A comparison of people with and without experience of spinal muscular atrophy.Resilience as a response to the stigma of depression: a mixed methods analysis.Knowledge is power? The role of experiential knowledge in genetically 'risky' reproductive decisions.Social networks--the future for health care delivery.Newborn genetic screening for spinal muscular atrophy in the UK: The views of the general population.Experience as knowledge: Disability, distillation and (reprogenetic) decision-making.The expressivist objection to prenatal testing: the experiences of families living with genetic disease.Accessing the field: Disability and the research process.Population screening for spinal muscular atrophy: A mixed methods study of the views of affected families.Newborn screening for spinal muscular atrophy: The views of affected families and adults.Responsibility, identity, and genomic sequencing: A comparison of published recommendations and patient perspectives on accepting or declining incidental findingsPreventing lives affected by hemophilia: A mixed methods study of the views of adults with hemophilia and their families toward genetic screeningNewborn screening for haemophilia: The views of families and adults living with haemophilia in the UKSocial and cultural influences on genetic screening programme acceptability: A mixed-methods study of the views of adults, carriers, and family members living with thalassemia in the UK"I didn't take it too seriously because I'd just never heard of it": Experiential knowledge and genetic screening for thalassaemia in the UKHow do genetically disabled adults view selective reproduction? Impairment, identity, and genetic screeningImproving the content validity of the mixed methods appraisal tool: a modified e-Delphi studyHuman genome editing and the identity politics of genetic disabilityLetter to the editor. Gene editing and disabled people: a response to Iñigo de Miguel BeriainWhose life is worth preserving? Disabled people and the expressivist objection to neonatology
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P50
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հետազոտող
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Felicity K Boardman
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Felicity K Boardman
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Felicity K. Boardman
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Felicity K. Boardman
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Felicity K Boardman
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Felicity K Boardman
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Felicity K. Boardman
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Felicity K. Boardman
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Felicity K Boardman
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Felicity K Boardman
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Felicity K. Boardman
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Felicity K. Boardman
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