The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe.
about
Quality of life and measures of quality of life in patients with neuromuscular disorders.Item response theory analysis of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised in the Pooled Resource Open-Access ALS Clinical Trials Database.Interaction of physical function, quality of life and depression in Amyotrophic lateral sclerosis: characterization of a large patient cohort.Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?Determinants of accepting non-invasive ventilation treatment in motor neurone disease: a quantitative analysis at point of needFeasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease.Amyotrophic lateral sclerosis: a consensus viewpoint on designing and implementing a clinical trial.A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers.Management guidelines for motor neurone disease patients on non-invasive ventilation at home.A Review: carers, MND and service provision.Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions.The stigma scale for chronic illnesses 8-item version (SSCI-8): development, validation and use across neurological conditions.Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review.The impact on the family carer of motor neurone disease and intervention with noninvasive ventilation.Psychological health in patients with ALS is maintained as physical function declines.A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions.A Qualitative Study of Multidisciplinary ALS Clinic Use in the United States.Caregiver burden in amyotrophic lateral sclerosis: A systematic review.Factors to consider for motor neurone disease carer intervention research: A narrative literature review.A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS).Stroke-related stigma among West Africans: Patterns and predictors.Struggling to find meaning in life among spouses of people with ALS.Factors related to caregiver strain in ALS: a longitudinal study.Health utility decreases with increasing clinical stage in amyotrophic lateral sclerosis.Development of the Motor Neuron Disease Carer Questionnaire.Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study.Patients' experiences of health and social care in long-term neurological conditions in England: a cross-sectional survey.The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease.Health-related quality of life among community-dwelling patients with intractable neurological diseases and their caregivers in Japan.Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: an exploratory qualitative study.Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time.
P2860
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P2860
The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe.
description
2000 nî lūn-bûn
@nan
2000年の論文
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2000年学术文章
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2000年学术文章
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2000年学术文章
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2000年学术文章
@zh-hans
2000年学术文章
@zh-my
2000年学术文章
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2000年學術文章
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2000年學術文章
@zh-hant
name
The ALS Health Profile Study: ...... patients and carers in Europe.
@en
The ALS Health Profile Study: ...... patients and carers in Europe.
@nl
type
label
The ALS Health Profile Study: ...... patients and carers in Europe.
@en
The ALS Health Profile Study: ...... patients and carers in Europe.
@nl
prefLabel
The ALS Health Profile Study: ...... patients and carers in Europe.
@en
The ALS Health Profile Study: ...... patients and carers in Europe.
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P2093
P921
P356
P1433
P1476
The ALS Health Profile Study: ...... patients and carers in Europe.
@en
P2093
ALS-HPS Steering Group
C Jenkinson
R Fitzpatrick
P2888
P304
P356
10.1007/S004150070069
P577
2000-11-01T00:00:00Z