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Health screening behaviors among adults with hereditary hemorrhagic telangiectasia in North AmericaAn exploration of genetic counselors' needs and experiences with prenatal chromosomal microarray testingSocial and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.Why is genetic screening for autosomal dominant disorders underused in families? The case of hereditary hemorrhagic telangiectasia.The IGNITE network: a model for genomic medicine implementation and research."It's not like judgment day": public understanding of and reactions to personalized genomic risk informationComparing genetic counselor's and patient's perceptions of needs in prenatal chromosomal microarray testing.Parents' perceptions of the usefulness of chromosomal microarray analysis for children with autism spectrum disorders"What does it mean?": uncertainties in understanding results of chromosomal microarray testing.When Participants in Genomic Research Grow Up: Contact and Consent at the Age of MajorityPre- and post-test genetic counseling for chromosomal and Mendelian disorders.Incorporating direct-to-consumer genomic information into patient care: attitudes and experiences of primary care physiciansWhat do clinicians derive from partnering with their patients? A reliable and valid measure of "personal meaning in patient care"Distress and burnout among genetic service providers.Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.Women's experiences receiving abnormal prenatal chromosomal microarray testing results.A qualitative study of healthcare providers' perspectives on the implications of genome-wide testing in pediatric clinical practice.Recommendations for the integration of genomics into clinical practice"Set in Stone" or "Ray of Hope": Parents' Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD.Toward a model informed consent process for BRCA1 testing: a qualitative assessment of women's attitudes.When genetic screening is useful, but not used.Scientists' and science writers' experiences reporting genetic discoveries: toward an ethic of trust in science journalism.Houseofficers' reactions to media coverage about the sequencing of the human genome.Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making.Are practicing and future physicians prepared to obtain informed consent? The case of genetic testing for susceptibility to breast cancer."Something Extra on Chromosome 5": Parents' Understanding of Positive Prenatal Chromosomal Microarray Analysis (CMA) Results.How do providers discuss the results of pediatric exome sequencing with families?"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.The role and impact of personal faith and religion among genetic service providers.The adolescent research participant: strategies for productive and ethical interviewing.Cost savings through molecular diagnosis for hereditary hemorrhagic telangiectasia.Genetic risk perception and reproductive decision making among people with epilepsy.Adolescents' transition to self-management of a chronic genetic disorder.Mapping the human genome: an assessment of media coverage and public reaction.National Society Of Genetic Counselors Natalie Weissberger Paul National Leadership Award Address: "Patients and Research: Paths to Personal and Professional Growth".Self-surveillance by adolescents and young adults transitioning to self-management of a chronic genetic disorder.Anticipated responses of early adopter genetic specialists and nongenetic specialists to unsolicited genomic secondary findings.Operationalizing the Reciprocal Engagement Model of Genetic Counseling Practice: a Framework for the Scalable Delivery of Genomic Counseling and Testing.Balancing Genetics (Science) and Counseling (Art) in Prenatal Chromosomal Microarray Testing.
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description
hulumtuese
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researcher
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wetenschapper
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հետազոտող
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name
Barbara A Bernhardt
@ast
Barbara A Bernhardt
@en
Barbara A Bernhardt
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Barbara A Bernhardt
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type
label
Barbara A Bernhardt
@ast
Barbara A Bernhardt
@en
Barbara A Bernhardt
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Barbara A Bernhardt
@nl
prefLabel
Barbara A Bernhardt
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Barbara A Bernhardt
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Barbara A Bernhardt
@es
Barbara A Bernhardt
@nl
P106
P21
P31
P496
0000-0002-9096-8765