The emergence of an ethical duty to disclose genetic research results: international perspectives
about
"Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studiesResearch ethics and the challenge of whole-genome sequencingDeveloping a tissue resource to characterize the genome of pancreatic cancerIncidental findings found in "healthy" volunteers during imaging performed for research: current legal and ethical implicationsEthical considerations of research policy for personal genome analysis: the approach of the Genome Science Project in JapanSharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing CountriesDo researchers have an obligation to actively look for genetic incidental findings?Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic dataReturn of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) NetworkOffering aggregate results to participants in genomic research: opportunities and challengesQualitative thematic analysis of consent forms used in cancer genome sequencingBiobanking in pediatrics: the human nonsubjects approachEthical implications of the use of whole genome methods in medical researchHandling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countriesPublic expectations for return of results from large-cohort genetic researchNot so simple: a quasi-experimental study of how researchers adjudicate genetic research resultsReturn of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT).Potential research participants support the return of raw sequence data.When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research resultsCommunicating the results of clinical research to participants: attitudes, practices, and future directions.Global report on preterm birth and stillbirth (6 of 7): ethical considerations.Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findingsSelf-guided management of exome and whole-genome sequencing results: changing the results return model.Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya.Considerations for designing a prototype genetic test for use in translational research.Returning individual research results for genome sequences of pancreatic cancer.Response to written feedback of clinical data within a longitudinal study: a qualitative study exploring the ethical implicationsReturn of results: ethical and legal distinctions between research and clinical care.Personal genome research : what should the participant be told?Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relativesProspective biorepository participants' perspectives on access to research results.Basic principles and technologies for deciphering the genetic map of cancer.A framework for analyzing the ethics of disclosing genetic research findings.Experiences and attitudes of genome investigators regarding return of individual genetic test results.Managing incidental findings and research results in genomic research involving biobanks and archived data sets.A case of 3q29 microdeletion syndrome involving oral cleft inherited from a nonaffected mosaic parent: molecular analysis and ethical implications.The best interests of the child and the return of results in genetic research: international comparative perspectives.Researcher practices on returning genetic research results.The LIFE child study: a life course approach to disease and health.Public's attitudes on participation in a biobank for research: an Italian survey
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The emergence of an ethical duty to disclose genetic research results: international perspectives
description
im Juli 2006 veröffentlichter wissenschaftlicher Artikel
@de
scientific article published on 26 July 2006
@en
wetenschappelijk artikel
@nl
наукова стаття, опублікована в листопаді 2006
@uk
name
The emergence of an ethical du ...... ts: international perspectives
@en
The emergence of an ethical du ...... ts: international perspectives
@nl
type
label
The emergence of an ethical du ...... ts: international perspectives
@en
The emergence of an ethical du ...... ts: international perspectives
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prefLabel
The emergence of an ethical du ...... ts: international perspectives
@en
The emergence of an ethical du ...... ts: international perspectives
@nl
P2093
P50
P356
P1476
The emergence of an ethical du ...... ts: international perspectives
@en
P2093
Francine Durocher
Jacques Simard
P2888
P304
P356
10.1038/SJ.EJHG.5201690
P407
P577
2006-07-26T00:00:00Z