Developing a policy for paediatric biobanks: principles for good practice. - sprookjes - yvandenbroek - TriplyDB

Developing a policy for paediatric biobanks: principles for good practice.

Developing a policy for paediatric biobanks: principles for good practice.

http://www.wikidata.org/entity/Q36497109

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Parental perspectives on consent for participation in large-scale, non-biological data repositories When Children Become Adults: Should Biobanks Re-Contact?Practical guidance on informed consent for pediatric participants in a biorepository Consent procedures in pediatric biobanks.Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics.Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.The best interests of the child and the return of results in genetic research: international comparative perspectives.Impacts of a biobank: Bridging the gap in translational cancer medicine.Personalized assent for pediatric biobanks.Governing biological material at the intersection of care and research: the use of dried blood spots for biobanking Regulating biobanking with children's tissue: a legal analysis and the experts' view Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.Clarifying assent in pediatric research Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in Biobanking Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Incidental findings from clinical genome-wide sequencing: a review.Return of genetic testing results in the era of whole-genome sequencing.The ethics of complexity. Genetics and autism, a literature review.Next-Generation Sequencing and the Return of Results.Preserving children's fertility: two tales about children's right to an open future and the margins of parental obligations.Crossing the boundary between research and health care: P3G policy statement on return of results from population studies.Communication of results and disclosure of incidental findings in longitudinal paediatric research.Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples.A novel metadata management model to capture consent for record linkage in longitudinal research studies.Ethics of children's participation in a Saudi biobank: an exploratory survey.Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach

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P2860

Developing a policy for paediatric biobanks: principles for good practice.

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European Journal of Human Genetics

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Developing a policy for paediatric biobanks: principles for good practice.

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Anneke Lucassen

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Carla E Van El

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Elena Salvaterra

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Eric Vermeulen

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Francesca Forzano

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Lisbeth Tranebjaerg

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PPPC of the European Society of Human Genetics

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P2860

Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations

Genomics and privacy: implications of the new reality of closed data for the field

Incidental findings in genetics research using archived DNA

Human genetic research, DNA banking and consent: a question of 'form'?

Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective.

Disclosure of individual genetic data to research participants: the debate reconsidered.

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers.

Disclosing individual genetic results to research participants.

Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.

Children, biobanks and the scope of parental consent

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10.1038/EJHG.2012.99

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Christine Patch

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Martina C Cornel

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227397199

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