Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the assessment of children and adolescents task force.
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Recommendations and evidence for reporting items in pediatric clinical trial protocols and reports: two systematic reviewsWhat matters to children with CFS/ME? A conceptual model as the first stage in developing a PROMOne size doesn't fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology?Patient-Reported Outcomes in Glomerular Disease.A global patient outcomes registry: Cochlear paediatric implanted recipient observational study (Cochlear(™) P-IROS).Standardized method to assess medicines' acceptability: focus on paediatric populationQualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy.Understanding burden of illness for child growth hormone deficiency.Patient-reported outcomes in clinical trials of rare diseases.Quality of life as patient-reported outcomes: principles of assessment.Development of an internationally agreed minimal dataset for juvenile dermatomyositis (JDM) for clinical and research use.Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures.Patient-Reported oral health outcome measurement for children and adolescents.Clinical Outcome Assessments: Conceptual Foundation-Report of the ISPOR Clinical Outcomes Assessment - Emerging Good Practices for Outcomes Research Task Force.Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer.Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): perspectives of health professionals from specialist services.Assessing health-related quality of life in young Japanese children with chronic conditions: Preliminary validation of the DISABKIDS smiley measure.Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the Common Terminology Criteria for Adverse Events.Developing Outcomes Assessments as Endpoints for Registrational Clinical Trials of Antibacterial Drugs: 2015 Update From the Biomarkers Consortium of the Foundation for the National Institutes of Health.Child and adolescent perceptions of oral health over the life course.Child and parent perspectives of the chronic graft-versus-host disease (cGVHD) symptom experience: a concept elicitation study.The concept of a toolbox of outcome measures for children with cerebral palsy: why, what, and how to use?Measuring the symptoms of pediatric constipation and irritable bowel syndrome with constipation: expert commentary and literature review.The spinal cord independence measure (SCIM)-III self report for youth.Evaluating functional outcomes in adolescents with attention-deficit/hyperactivity disorder: development and initial testing of a self-report instrument.Measurement invariance, the lack thereof, and modeling change.Cognitive Testing of an Electronic Version of the Faces Pain Scale-Revised with Pediatric and Adolescent Sickle Cell Patients.Bending the Cost Curve in Childhood Cancer.CHILDSPLA: a collaboration between children and researchers to design and animate health states.Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia.Development and initial validation of the Cat HEalth and Wellbeing (CHEW) Questionnaire: a generic health-related quality of life instrument for cats.Validity, reliability and discriminative capacity of an electronic quality of life instrument (Pelican) for childhood asthma in the Netherlands.Evaluation of pedometry as a patient-centered outcome in patients undergoing hematopoietic cell transplant (HCT): a comparison of pedometry and patient reports of symptoms, health, and quality of life.Asthma-like symptoms, diagnostic tests, and asthma medication use in children and adolescents: a population-based nationwide survey.Understanding Treatment Burden for Children Treated for Growth Hormone Deficiency.Development of the pediatric daily ulcerative colitis signs and symptoms scale (DUCS): qualitative research findings.Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents.The impact of influenza on the health related quality of life in China: an EQ-5D survey.Development of a youth-report measure of DPN symptoms: Conceptualization and content validation.Initial psychometric validation of the questionnaire on pain caused by spasticity (QPS).
P2860
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P2860
Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the assessment of children and adolescents task force.
description
2013 nî lūn-bûn
@nan
2013年の論文
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2013年学术文章
@wuu
2013年学术文章
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2013年学术文章
@zh-hans
2013年学术文章
@zh-my
2013年学术文章
@zh-sg
2013年學術文章
@yue
2013年學術文章
@zh
2013年學術文章
@zh-hant
name
Pediatric patient-reported out ...... en and adolescents task force.
@en
Pediatric patient-reported out ...... en and adolescents task force.
@nl
type
label
Pediatric patient-reported out ...... en and adolescents task force.
@en
Pediatric patient-reported out ...... en and adolescents task force.
@nl
altLabel
Pediatric patient-reported out ...... ren and adolescents task force
@en
prefLabel
Pediatric patient-reported out ...... en and adolescents task force.
@en
Pediatric patient-reported out ...... en and adolescents task force.
@nl
P2093
P50
P921
P1433
P1476
Pediatric patient-reported out ...... ren and adolescents task force
@en
Pediatric patient-reported out ...... en and adolescents task force.
@en
P2093
Alexander JJ
Andreas M Pleil
Anne W Riley
Bullinger M
John J Alexander
Louis S Matza
P2880
P304
P356
10.1016/J.JVAL.2013.04.004
P577
2013-06-01T00:00:00Z