about
Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experienceResearch capacity. Enabling the genomic revolution in Africa.Research priorities. ELSI 2.0 for genomics and society."It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-useCommunity engagement strategies for genomic studies in Africa: a review of the literature.Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees.Exploring researchers' experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics studyRegulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries."I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries.Would you terminate a pregnancy affected by sickle cell disease? Analysis of views of patients in Cameroon.Ethical, legal and social issues in the context of the planning stages of the Southern African Human Genome Programme.Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope.Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers.Implications of direct-to-consumer whole-exome sequencing in South Africa.The obesity epidemic: medical and ethical considerations.Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa.Accessing Biospecimens from the H3Africa Consortium.Ethical Challenges in Contemporary FASD Research and Practice.Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa.H3Africa: current perspectives.Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.Predictors of consent to cell line creation and immortalisation in a South African schizophrenia genomics study.Model framework for governance of genomic research and biobanking in Africa – a content descriptionEditorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science)The Path Forward for DNA DataModel framework for governance of genomic research and biobanking in Africa – a content descriptionPotential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic riskPotential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic riskCommunity engagement in global health research that advances health equityThe NeuroDev Study: Phenotypic and Genetic Characterization of Neurodevelopmental Disorders in Kenya and South AfricaEthical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting reportReturning incidental findings in African genomics researchConsent insufficient for data release
P50
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P50
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researcher ORCID: 0000-0001-7192-2633
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wetenschapper
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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Jantina de Vries
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P106
P21
P31
P496
0000-0001-7192-2633