Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues - Wikidata - awgldk - TriplyDB

Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

http://www.wikidata.org/entity/Q26738901

about

The burden of amyloid light chain amyloidosis on health-related quality of life.Does orthopaedic surgery improve quality of life and function in patients with mucopolysaccharidoses?Psychometric validation of the SF-36 Health Survey in light chain amyloidosis: results from community-based and clinic-based samples.Quality of life in mucopolysaccharidoses: construction of a specific measure using the focus group technique.

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P2860

Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

http://www.wikidata.org/entity/Q26738901

description

2016 nî lūn-bûn

@nan

2016 թուականի Օգոստոսին հրատարակուած գիտական յօդուած

@hyw

2016 թվականի օգոստոսին հրատարակված գիտական հոդված

@hy

2016年の論文

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2016年論文

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2016年論文

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2016年論文

@zh-hk

2016年論文

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2016年論文

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2016年论文

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name

Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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type

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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S13023-016-0503-2

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Orphanet Journal of Rare Diseases

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Health-related quality of life in mucopolysaccharidosis: looking beyond biomedical issues

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Christina Lampe

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Jeffrey I Gold

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Paul J Orchard

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Rebecca Southall

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Sarah Long

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Susanne G Kircher

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Creative Commons Attribution 4.0 International

P2860

The PedsQL Family Impact Module: preliminary reliability and validity

Clinical overview and treatment options for non-skeletal manifestations of mucopolysaccharidosis type IVA

Mortality and cause of death in mucopolysaccharidosis type II-a historical review based on data from the Hunter Outcome Survey (HOS).

Burden of disease in patients with Morquio A syndrome: results from an international patient-reported outcomes survey.

Determining minimally important changes in generic and disease-specific health-related quality of life questionnaires in clinical trials of rheumatoid arthritis.

Enzyme replacement therapy for mucopolysaccharidosis VI: Growth and pubertal development in patients treated with recombinant human N-acetylgalactosamine 4-sulfatase.

Patient reported outcomes: looking beyond the label claim.

The natural history of MPS I: global perspectives from the MPS I Registry.

Efficacy and safety of enzyme replacement therapy with BMN 110 (elosulfase alfa) for Morquio A syndrome (mucopolysaccharidosis IVA): a phase 3 randomised placebo-controlled study.

Multi-domain impact of elosufase alfa in Morquio A syndrome in the pivotal phase III trial.

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s13023-016-0503-2

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scholarly article

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10.1186/S13023-016-0503-2

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1

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Kenneth I. Berger

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2016-08-26T00:00:00Z

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1030831505

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27561270

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quality of life

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