Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience
about
Evolving approaches to the ethical management of genomic dataGenetic data and electronic health records: a discussion of ethical, logistical and technological considerationsThe tension between data sharing and the protection of privacy in genomics researchBig data, open science and the brain: lessons learned from genomicsIf you build it, they will come: unintended future uses of organised health data collectionsConducting a large, multi-site survey about patients' views on broad consent: challenges and solutionsCOINSTAC: A Privacy Enabled Model and Prototype for Leveraging and Processing Decentralized Brain Imaging DataPractical considerations in genomic decision support: The eMERGE experienceFrom the principles of genomic data sharing to the practices of data access committeesPractical guidance on informed consent for pediatric participants in a biorepositoryDo researchers have an obligation to actively look for genetic incidental findings?Secondary use of clinical data: the Vanderbilt approachParticipant-Centric Initiatives: Tools to Facilitate Engagement In ResearchA human rights approach to an international code of conduct for genomic and clinical data sharingData sharing in large research consortia: experiences and recommendations from ENGAGEAttitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research settingSharing privacy-sensitive access to neuroimaging and genetics data: a review and preliminary validationBiobanking: The Melding of Research with Clinical CareReturn of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) NetworkThe Electronic Medical Records and Genomics (eMERGE) Network: past, present, and futureEmerging issues in paediatric health research consent forms in Canada: working towards best practicesA mechanism for controlled access to GWAS data: experience of the GAIN Data Access CommitteedbGaP data access requests: a call for greater transparencyBalancing the risks and benefits of genomic data sharing: genome research participants' perspectivesGenome-wide association studies in pediatric chronic kidney disease.Orchestrating differential data access for translational research: a pilot implementation.Security controls in an integrated Biobank to protect privacy in data sharing: rationale and study design.Storing and interpreting genomic information in widely deployed electronic health record systems.A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.Participants' Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles.SECA: SNP effect concordance analysis using genome-wide association summary results.The International Serious Adverse Events Consortium's data sharing model.Streamlining review of research involving humans: Canadian models.Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences
P2860
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P2860
Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience
description
2011 nî lūn-bûn
@nan
2011 թուականի Յուլիսին հրատարակուած գիտական յօդուած
@hyw
2011 թվականի հուլիսին հրատարակված գիտական հոդված
@hy
2011年の論文
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2011年論文
@yue
2011年論文
@zh-hant
2011年論文
@zh-hk
2011年論文
@zh-mo
2011年論文
@zh-tw
2011年论文
@wuu
name
Ethical and practical challeng ...... e eMERGE Consortium experience
@ast
Ethical and practical challeng ...... e eMERGE Consortium experience
@en
Ethical and practical challeng ...... e eMERGE Consortium experience
@nl
type
label
Ethical and practical challeng ...... e eMERGE Consortium experience
@ast
Ethical and practical challeng ...... e eMERGE Consortium experience
@en
Ethical and practical challeng ...... e eMERGE Consortium experience
@nl
prefLabel
Ethical and practical challeng ...... e eMERGE Consortium experience
@ast
Ethical and practical challeng ...... e eMERGE Consortium experience
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Ethical and practical challeng ...... e eMERGE Consortium experience
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P2093
P2860
P50
P921
P3181
P356
P1433
P1476
Ethical and practical challeng ...... e eMERGE Consortium experience
@en
P2093
Carol P Somkin
Carol Waudby
Cathy A McCarty
Erin Ramos
Lynn G Dressler
Maureen E Smith
Melissa Basford
Rongling Li
Wendy A Wolf
P2860
P304
P3181
P356
10.1101/GR.120329.111
P407
P577
2011-07-01T00:00:00Z