Public and biobank participant attitudes toward genetic research participation and data sharing
about
Evolving approaches to the ethical management of genomic dataStakeholders' perspectives on biobank-based genomic research: systematic review of the literatureStakeholder engagement: a key component of integrating genomic information into electronic health recordsIdentifiability in biobanks: models, measures, and mitigation strategiesThe MICHR Genomic DNA BioLibrary: An Empirical Study of the Ethics of Biorepository DevelopmentScientists' perspectives on consent in the context of biobanking research.Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutionsThe alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanksSamples and data accessibility in research biobanks: an explorative surveyTrust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in VietnamPrioritizing Approaches to Engage Community Members and Build Trust in Biobanks: A Survey of Attitudes and Opinions of Adults within Outpatient Practices at the University of MarylandTo Share or Not to Share? A Survey of Biomedical Researchers in the U.S. Southwest, an Ethnically Diverse RegionResearch participants' attitudes towards the confidentiality of genomic sequence informationOpen access data sharing in genomic researchNewspaper coverage of biobanksGenetic research participation in a young adult community sampleRevisiting respect for persons in genomic researchBiobanking: The Melding of Research with Clinical CareOffering aggregate results to participants in genomic research: opportunities and challengesBalancing the risks and benefits of genomic data sharing: genome research participants' perspectivesGenomic research and wide data sharing: views of prospective participantsPublic perspectives regarding data-sharing practices in genomics researchThe eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studiesEthical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experienceOpen sharing of genomic data: Who does it and why?Evidence for chromosome 2p16.3 polycystic ovary syndrome susceptibility locus in affected women of European ancestryPublic Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the USPublics and biobanks: Pan-European diversity and the challenge of responsible innovationActive choice but not too active: public perspectives on biobank consent models.Genomic data in the electronic medical record: perspectives from a biobank community advisory board.A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics researchWho should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?Community engagement in US biobanking: multiplicity of meaning and method.De-identified genomic data sharing: the research participant perspective.Bio-collections in autism research.From protection of privacy to control of data streams: a focus group study on biobanks in the information society.Molecular genetic testing and the future of clinical genomics.Research ethics. Research practice and participant preferences: the growing gulf.
P2860
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P2860
Public and biobank participant attitudes toward genetic research participation and data sharing
description
2010 nî lūn-bûn
@nan
2010 թուականի Յունուարին հրատարակուած գիտական յօդուած
@hyw
2010 թվականի հունվարին հրատարակված գիտական հոդված
@hy
2010年の論文
@ja
2010年論文
@yue
2010年論文
@zh-hant
2010年論文
@zh-hk
2010年論文
@zh-mo
2010年論文
@zh-tw
2010年论文
@wuu
name
Public and biobank participant ...... participation and data sharing
@ast
Public and biobank participant ...... participation and data sharing
@en
type
label
Public and biobank participant ...... participation and data sharing
@ast
Public and biobank participant ...... participation and data sharing
@en
prefLabel
Public and biobank participant ...... participation and data sharing
@ast
Public and biobank participant ...... participation and data sharing
@en
P2093
P2860
P921
P356
P1476
Public and biobank participant ...... participation and data sharing
@en
P2093
J Hebert-Beirne
P2860
P304
P356
10.1159/000276767
P577
2010-01-15T00:00:00Z