Health-related quality of life in children with sickle cell disease: a report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium. - Wikidata - awgldk - TriplyDB

Health-related quality of life in children with sickle cell disease: a report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium.

Health-related quality of life in children with sickle cell disease: a report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium.

http://www.wikidata.org/entity/Q34026575

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Comorbidity, Pain, Utilization, and Psychosocial Outcomes in Older versus Younger Sickle Cell Adults: The PiSCES Project PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients: feasibility, reliability, and validity.Sleep disturbance, depression and pain in adults with sickle cell disease.Insurance status as a sociodemographic risk factor for functional outcomes and health-related quality of life among youth with sickle cell disease Parental problem-solving abilities and the association of sickle cell disease complications with health-related quality of life for school-age children.Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports.Health related quality of life among adolescents with sickle cell disease in Saudi Arabia PedsQL™ sickle cell disease module: feasibility, reliability, and validity.Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods.Health-related quality of life in children with sickle cell disease using the child health questionnaire Health-related quality of life (HRQL) in children with sickle cell disease and thalassemia following hematopoietic stem cell transplant (HSCT).PROMIS(®) pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions.Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric sickle cell disease.High dose vitamin D therapy for chronic pain in children and adolescents with sickle cell disease: results of a randomized double blind pilot study.Health-related quality of life in patients with sickle cell disease in Saudi Arabia.Predictors of Academic Achievement for School Age Children with Sickle Cell Disease.Initial Evaluation of the Pediatric PROMIS® Health Domains in Children and Adolescents With Sickle Cell Disease Community Health Workers as Support for Sickle Cell Care Psychometric Evaluation of the Patient-Reported Outcomes Measurement Information System Fatigue-Short Form Across Diverse Populations.Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea Responsiveness of PROMIS® Pediatric Measures to Hospitalizations for Sickle Pain and Subsequent Recovery.PedsQL™ Multidimensional Fatigue Scale in sickle cell disease: feasibility, reliability, and validity Pain characteristics and age-related pain trajectories in infants and young children with sickle cell disease.Fatigue in adolescents and young adults with sickle cell disease: biological and behavioral correlates and health-related quality of life.Health-related quality of life in sickle cell disease: past, present, and future.Emerging science of hydroxyurea therapy for pediatric sickle cell disease.Health-related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease.Patterns of opioid use in sickle cell disease.Comparison between objective measures and parental behavioral rating scales of memory and attention in pediatric endocrinology patients.Characterization of opioid use in sickle cell disease.Daily pain in adults with sickle cell disease-a different perspective.Health-related quality of life in adults with transfusion-independent thalassaemia intermedia compared to regularly transfused thalassaemia major: new insights.Pain, coping, and sleep in children and adolescents with sickle cell disease.Family Functioning, Medical Self-Management, and Health Outcomes Among School-Aged Children With Sickle Cell Disease: A Mediation Model.Sleep Problem Risk for Adolescents With Sickle Cell Disease: Sociodemographic, Physical, and Disease-related Correlates.Predictors of health-related quality of life over time among adolescents and young adults with sickle cell disease.Factorial invariance of pediatric patient self-reported fatigue across age and gender: a multigroup confirmatory factor analysis approach utilizing the PedsQL™ Multidimensional Fatigue Scale.Population based surveillance in sickle cell disease: methods, findings and implications from the California registry and surveillance system in hemoglobinopathies project (RuSH).HABIT, a Randomized Feasibility Trial to Increase Hydroxyurea Adherence, Suggests Improved Health-Related Quality of Life in Youths with Sickle Cell Disease.

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P2860

Health-related quality of life in children with sickle cell disease: a report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium.

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2010 nî lūn-bûn

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2010 թուականի Սեպտեմբերին հրատարակուած գիտական յօդուած

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2010 թվականի սեպտեմբերին հրատարակված գիտական հոդված

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2010年の論文

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2010年論文

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2010年論文

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2010年論文

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2010年論文

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2010年論文

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2010年论文

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Comprehensive Sickle Cell Centers (CSCC) Clinical Trial Consortium (CTC)

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Kim Smith-Whitley

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Marsha McMurray

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Petra LeBeau

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P2860

Deconstructing sickle cell disease: reappraisal of the role of hemolysis in the development of clinical subphenotypes.

Parental report of health-related quality of life in children with sickle cell disease.

Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events.

Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 Generic Core Scales.

Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales.

Sickle cell vaso-occlusion.

Pulmonary hypertension in sickle cell disease: mechanisms, diagnosis, and management.

Validity of the Pediatric Quality Of Life Inventory for youth with sickle cell disease.

The performance of the PedsQL generic core scales in children with sickle cell disease

Home management of pain in sickle cell disease: a daily diary study in children and adolescents.

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10.1002/PBC.22497

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3

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55

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Carlton Dampier

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45289491

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quality of life

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