Health-related quality of life in sickle cell disease: past, present, and future.
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Hematopoietic stem cell transplantation in sickle cell disease: patient selection and special considerationsDetermining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease ModuleAdherence to hydroxyurea, health-related quality of life domains, and patients' perceptions of sickle cell disease and hydroxyurea: a cross-sectional study in adolescents and young adults.Clinically meaningful interpretation of pediatric health-related quality of life in sickle cell diseaseHealth-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy.Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports.Role of self-care in sickle cell disease.Ambulatory quality indicators to prevent infection in sickle cell disease.Saudi SCD patients' symptoms and quality of life relative to the number of ED visits.Perceptions of young adults with sickle cell disease concerning their disease experience.Initial Evaluation of the Pediatric PROMIS® Health Domains in Children and Adolescents With Sickle Cell DiseaseValidation of the sickle cell disease pain burden interview-youth.Psychometric Properties of the Psychosocial Assessment Tool-General in Adolescents and Young Adults With Sickle Cell Disease.Reproductive health choices for young adults with sickle cell disease or trait: randomized controlled trial immediate posttest effects.Responsiveness of PROMIS® Pediatric Measures to Hospitalizations for Sickle Pain and Subsequent Recovery.Sickle cell disease: time for a closer look at treatment options?Psychosocial burden of sickle cell disease on parents with an affected child in Cameroon.The trials and hopes for drug development in sickle cell disease.Clinical risks and healthcare utilization of haematopoietic cell transplantation for sickle cell disease in the U.S. using merged databases.Patient Perspectives on Gene Transfer Therapy for Sickle Cell Disease.Health-related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease.Knowledge insufficient: the management of haemoglobin SC disease.Psychosocial stressors of sickle cell disease on adult patients in Cameroon.Selection-free genome editing of the sickle mutation in human adult hematopoietic stem/progenitor cells.Proponent or collaborative: Physician perspectives and approaches to disease modifying therapies in sickle cell disease.Health related quality of life and perception of stigmatisation in adolescents living with sickle cell disease in Nigeria: A cross sectional study.Barriers to hydroxyurea adherence and health-related quality of life in adolescents and young adults with sickle cell disease.Family Functioning, Medical Self-Management, and Health Outcomes Among School-Aged Children With Sickle Cell Disease: A Mediation Model.Predictors of health-related quality of life over time among adolescents and young adults with sickle cell disease.Cost-Effectiveness Methods and Newborn Screening Assessment.HABIT, a Randomized Feasibility Trial to Increase Hydroxyurea Adherence, Suggests Improved Health-Related Quality of Life in Youths with Sickle Cell Disease.[Formula: see text]Executive functioning and health-related quality of life in pediatric sickle cell disease.Hydroxyurea and Pain History in Relation to Patient-Reported Outcomes Using PROMIS Measures and the Frequency of Assessments in Sickle Cell Disease Patients.Patient-Centered eHealth Interventions for Children, Adolescents, and Adults With Sickle Cell Disease: Systematic ReviewAssociation between Participants' Characteristics, Patient-Reported Outcomes, and Clinical Outcomes in Youth with Sickle Cell DiseaseQuality of life among caregivers of sickle cell disease patients: a cross sectional study
P2860
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P2860
Health-related quality of life in sickle cell disease: past, present, and future.
description
article científic
@ca
article scientifique
@fr
articol științific
@ro
articolo scientifico
@it
artigo científico
@gl
artigo científico
@pt
artigo científico
@pt-br
artikel ilmiah
@id
artikull shkencor
@sq
artículo científico
@es
name
Health-related quality of life in sickle cell disease: past, present, and future.
@en
type
label
Health-related quality of life in sickle cell disease: past, present, and future.
@en
prefLabel
Health-related quality of life in sickle cell disease: past, present, and future.
@en
P2860
P356
P1476
Health-related quality of life in sickle cell disease: past, present, and future.
@en
P2093
Julie A Panepinto
Melanie Bonner
P2860
P304
P356
10.1002/PBC.24176
P577
2012-04-22T00:00:00Z