Life with a rare chronic disease: the scleroderma experience.
about
Review of orofacial considerations of systemic sclerosis or scleroderma with report of analysis of 3 casesUsing the internet to seek information about genetic and rare diseases: a case study comparing data from 2006 and 2011The short-term effect of gloving in combination with Traditional Thai Massage, heat, and stretching exercise to improve hand mobility in scleroderma patientsImpaired quality of life in patients with systemic sclerosis compared to the general population and chronic dermatosesConcepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries.Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group StudyPatients' views and needs about systemic sclerosis and its management: a qualitative interview study.In systemic sclerosis, anxiety and depression assessed by hospital anxiety depression scale are independently associated with disability and psychological factors.Scleroderma: considerations for dental hygienists.The impact of vasculitis on patients' social participation and friendships.What, if anything, is specific about having a rare disorder? Patients' judgements on being ill and being rare.Become your own advocate: advice from women living with sclerodermaExperiences and perspectives of adults living with systemic lupus erythematosus: thematic synthesis of qualitative studies.Being in a standstill-of-life: women's experience of being diagnosed with systemic lupus erythematosus: a hermeneutic-phenomenological study.Spiritual well-being and coping in scleroderma, lupus erythematosus, and melanoma.Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-sectional Study."People are all about appearances": A focus group of teenagers with Moebius Syndrome.Social interaction experiences of adults with Moebius Syndrome: a focus group.Skin and mucosa care in systemic sclerosis--patients' and family caregivers' experiences and expectations of a specific education programme: a qualitative study.The lived experience of having a rare medical disorder: Hermansky-Pudlak syndrome.Living with scleroderma: patients' perspectives, a phenomenological study.Understanding coping strategies among people living with scleroderma: a focus group study.Living with and treating rare diseases: experiences of patients and professional health care providers.Health-related quality of life among adults with diverse rare disorders."It's Not Me, It's Not Really Me." Insights From Patients on Living With Systemic Sclerosis: An Interview Study.Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.Development and use of new therapeutics for rare diseases: views from patients, caregivers, and advocates.Taking charge of systemic sclerosis: a pilot study to assess the effectiveness of an internet self-management program.The experience of emotional distress among women with scleroderma.Health-Related Quality of Life Is Severely Affected in Primary Orthostatic Tremor.The rehabilitation of facial involvement in systemic sclerosis: efficacy of the combination of connective tissue massage, Kabat's technique and kinesitherapy: a randomized controlled trial.
P2860
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P2860
Life with a rare chronic disease: the scleroderma experience.
description
2003 nî lūn-bûn
@nan
2003 թուականի Յունիսին հրատարակուած գիտական յօդուած
@hyw
2003 թվականի հունիսին հրատարակված գիտական հոդված
@hy
2003年の論文
@ja
2003年論文
@yue
2003年論文
@zh-hant
2003年論文
@zh-hk
2003年論文
@zh-mo
2003年論文
@zh-tw
2003年论文
@wuu
name
Life with a rare chronic disease: the scleroderma experience.
@ast
Life with a rare chronic disease: the scleroderma experience.
@en
Life with a rare chronic disease: the scleroderma experience.
@nn
type
label
Life with a rare chronic disease: the scleroderma experience.
@ast
Life with a rare chronic disease: the scleroderma experience.
@en
Life with a rare chronic disease: the scleroderma experience.
@nn
prefLabel
Life with a rare chronic disease: the scleroderma experience.
@ast
Life with a rare chronic disease: the scleroderma experience.
@en
Life with a rare chronic disease: the scleroderma experience.
@nn
P2860
P1476
Life with a rare chronic disease: the scleroderma experience.
@en
P2093
Gloria Joachim
Sonia Acorn
P2860
P304
P356
10.1046/J.1365-2648.2003.02663.X
P407
P577
2003-06-01T00:00:00Z