Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.

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Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.

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2017 nî lūn-bûn

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2017年の論文

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2017年学术文章

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2017年学术文章

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2017年学术文章

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2017年学术文章

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2017年学术文章

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2017年學術文章

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2017年學術文章

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Reasons for attending support ...... support group members survey.

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Reasons for attending support ...... support group members survey.

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type

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Reasons for attending support ...... support group members survey.

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Reasons for attending support ...... support group members survey.

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Reasons for attending support ...... support group members survey.

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Reasons for attending support ...... support group members survey.

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P1476

Reasons for attending support ...... support group members survey.

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P2093

Brett D Thombs

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Ghassan El-Baalbaki

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Marie-Eve Carrier

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Mia Pépin

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Sandra Peláez

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Scleroderma Support Group Project Advisory Team

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Stephanie T Gumuchian

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Vanessa C Delisle

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P2860

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.

Comparison of clinical and self reported diagnosis for rheumatology outpatients

Epidemiology of systemic sclerosis: incidence, prevalence, survival, risk factors, malignancy, and environmental triggers.

Cancer support groups: meeting the needs of African Americans with cancer.

Life with a rare chronic disease: the scleroderma experience.

Self-management interventions for chronic illness.

Why rare diseases are an important medical and social issue.

Psychosocial Aspects of Scleroderma.

Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-sectional Study.

Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review.

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974-982

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scholarly article

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10.1080/09638288.2017.1416497

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P433

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P478

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Linda Kwakkenbos

Vanessa L Malcarne

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2017-12-19T00:00:00Z

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29254393

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