Pediatric biobanks: approaching informed consent for continuing research after children grow up.
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The evolution of biobanking best practicesParental perspectives on consent for participation in large-scale, non-biological data repositoriesWhen Children Become Adults: Should Biobanks Re-Contact?Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutionsPractical guidance on informed consent for pediatric participants in a biorepositoryHandling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countriesActive choice but not too active: public perspectives on biobank consent models.Parent perspectives on privacy and governance for a pediatric repository of non-biological, research data.A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.Approaching parents to take part in a cleft gene bank: a qualitative pilot study.Is deidentification sufficient to protect health privacy in research?Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.Genetic research with stored biological materials: ethics and practice.Attitudes of African-American parents about biobank participation and return of results for themselves and their childrenChildren, biobanks and the scope of parental consentBuilding the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.Lessons that newborn screening in the USA can teach us about biobanking and large-scale genetic studies.When Participants in Genomic Research Grow Up: Contact and Consent at the Age of MajoritySpecimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consentFeasibility of neonatal dried blood spot retrieval amid evolving state policies (2009-2010): a Children's Oncology Group study.Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in BiobankingPaediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Children and biobanks: a review of the ethical and legal discussion.Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois.Public support for the use of newborn screening dried blood spots in health research.A comparative analysis of the governance and use of residual dried blood spots from state newborn screening programs and neonatal biobanks.Does consent bias research?Ethics of children's participation in a Saudi biobank: an exploratory survey.Engaging children in genomics research: decoding the meaning of assent in research
P2860
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P2860
Pediatric biobanks: approaching informed consent for continuing research after children grow up.
description
2009 nî lūn-bûn
@nan
2009年の論文
@ja
2009年論文
@yue
2009年論文
@zh-hant
2009年論文
@zh-hk
2009年論文
@zh-mo
2009年論文
@zh-tw
2009年论文
@wuu
2009年论文
@zh
2009年论文
@zh-cn
name
Pediatric biobanks: approachin ...... search after children grow up.
@ast
Pediatric biobanks: approachin ...... search after children grow up.
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type
label
Pediatric biobanks: approachin ...... search after children grow up.
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Pediatric biobanks: approachin ...... search after children grow up.
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prefLabel
Pediatric biobanks: approachin ...... search after children grow up.
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Pediatric biobanks: approachin ...... search after children grow up.
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P2093
P2860
P1476
Pediatric biobanks: approachin ...... search after children grow up.
@en
P2093
Aaron J Goldenberg
Jeffrey R Botkin
Sara Chandros Hull
P2860
P304
P356
10.1016/J.JPEDS.2009.04.034
P407
P577
2009-10-01T00:00:00Z