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Engaging children in genomics research: decoding the meaning of assent in research

Engaging children in genomics research: decoding the meaning of assent in research

http://www.wikidata.org/entity/Q56774935

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Return of individual research results and incidental findings: facing the challenges of translational science Practical guidance on informed consent for pediatric participants in a biorepository Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases Personalized assent for pediatric biobanks.Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice.Clarifying assent in pediatric research Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in Biobanking Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy.Psychosocial effects in parents and children 12 years after newborn genetic screening for type 1 diabetes.An Observational Study of Children's Involvement in Informed Consent for Exome Sequencing Research.Deception of children in research.Adolescent engagement during assent for exome sequencing

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P2860

Engaging children in genomics research: decoding the meaning of assent in research

http://www.wikidata.org/entity/Q56774935

description

scientific article published on 09 February 2012

@en

wetenschappelijk artikel

@nl

наукова стаття, опублікована у квітні 2012

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name

Engaging children in genomics research: decoding the meaning of assent in research

@en

Engaging children in genomics research: decoding the meaning of assent in research

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type

label

Engaging children in genomics research: decoding the meaning of assent in research

@en

Engaging children in genomics research: decoding the meaning of assent in research

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prefLabel

Engaging children in genomics research: decoding the meaning of assent in research

@en

Engaging children in genomics research: decoding the meaning of assent in research

@nl

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Genetics in Medicine

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Engaging children in genomics research: decoding the meaning of assent in research

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Douglas S Diekema

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P2860

Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries

Three steps to protecting pediatric research participants from excessive risks

Crossing species boundaries.

Children, biobanks and the scope of parental consent

Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.

Informed consent in genomics and genetic research.

How do institutional review boards apply the federal risk and benefit standards for pediatric research?

One-time general consent for research on biological samples

Assent in paediatric research: theoretical and practical considerations

Conducting ethical research in pediatrics: a brief historical overview and review of pediatric regulations.

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437-443

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scholarly article

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10.1038/GIM.2012.9

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4

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14

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Benjamin S Wilfond

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2012-02-09T00:00:00Z

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22323071

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