Quality of life among parents of children with phenylketonuria (PKU)

Quality of life among parents of children with phenylketonuria (PKU)

Item
http://www.wikidata.org/entity/Q36766986
Quality of Life (QoL) assessment in a cohort of patients with phenylketonuria.Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires.Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review.Depression and anxiety among parents of phenylketonuria childrenEffect of Instructing Care Program Through Group Discussion on the Quality of Life of the Parents of the Children Afflicted With LeukemiaConsensus guideline for the diagnosis and treatment of aromatic l-amino acid decarboxylase (AADC) deficiency.Experiences of caregivers of children with inherited metabolic diseases: a qualitative study.Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU).Obtaining a genetic diagnosis in a child with disability: impact on parental quality of life.Sapropterin treatment does not enhance the health-related quality of life of patients with phenylketonuria and their parents.Craniofacial anomalies and mothers' psychological functioning: The mediating role of social support.Quality of life among German parents of children with cystic fibrosis: the effects of being a single caregiver.Findings from qualitative studies suggest parents of children with disabilities benefit from peer support; whereas findings from quantitative studies are inconclusive.
P2860

Quality of life among parents of children with phenylketonuria (PKU)

Item
http://www.wikidata.org/entity/Q36766986
description
2013 nî lūn-bûn
@nan
2013年の論文
@ja
2013年論文
@yue
2013年論文
@zh-hant
2013年論文
@zh-hk
2013年論文
@zh-mo
2013年論文
@zh-tw
2013年论文
@wuu
2013年论文
@zh
2013年论文
@zh-cn
name
Quality of life among parents of children with phenylketonuria (PKU)
@ast
Quality of life among parents of children with phenylketonuria (PKU)
@en
type
label
Quality of life among parents of children with phenylketonuria (PKU)
@ast
Quality of life among parents of children with phenylketonuria (PKU)
@en
prefLabel
Quality of life among parents of children with phenylketonuria (PKU)
@ast
Quality of life among parents of children with phenylketonuria (PKU)
@en
P1433
P1476
P2093
P2860
P2888
P304
P31
P356
P478
P577
P5875
P6179
P698
P921
P932
P356
P1433
P1476
Quality of life among parents of children with phenylketonuria (PKU)
@en
P2093
P2860
P2888
P304
P31
P356
P478
P577
P5875
P6179
P698
P921
P932