Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.
about
Difficulties in Daily Life and Associated Factors, and QoL of Children with Inherited Metabolic Disease and Their Parents in Japan: A Literature ReviewDevelopment and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires.The burden of amyloid light chain amyloidosis on health-related quality of life.Quality of life in phenylketonuria (PKU) patients residing in Iehran, Islamic republic of Iran.Development of the US English version of the phenylketonuria - quality of life (PKU-QOL) questionnaireThe complete European guidelines on phenylketonuria: diagnosis and treatment.Quality of life and adherence to treatment in early-treated Brazilian phenylketonuria pediatric patients.Psychometric validation of the SF-36 Health Survey in light chain amyloidosis: results from community-based and clinic-based samples.Sapropterin treatment does not enhance the health-related quality of life of patients with phenylketonuria and their parents.Extended Experience of Lower Dose Sapropterin in Irish Adults with Mild Phenylketonuria.Caregiver Quality of Life with Tyrosinemia Type 1.Patient reported outcome measures in rare diseases: a narrative review.
P2860
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P2860
Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.
description
2015 nî lūn-bûn
@nan
2015年の論文
@ja
2015年論文
@yue
2015年論文
@zh-hant
2015年論文
@zh-hk
2015年論文
@zh-mo
2015年論文
@zh-tw
2015年论文
@wuu
2015年论文
@zh
2015年论文
@zh-cn
name
Assessment of the impact of ph ...... from seven European countries.
@ast
Assessment of the impact of ph ...... from seven European countries.
@en
type
label
Assessment of the impact of ph ...... from seven European countries.
@ast
Assessment of the impact of ph ...... from seven European countries.
@en
prefLabel
Assessment of the impact of ph ...... from seven European countries.
@ast
Assessment of the impact of ph ...... from seven European countries.
@en
P2093
P2860
P1476
Assessment of the impact of ph ...... from seven European countries
@en
P2093
Alberto Burlina
Amy Cunningham
Antoine Regnault
Ekaterina Koledova
Esther Bettiol
Flavie Moreau-Stucker
Khadra Benmedjahed
P2860
P2888
P356
10.1186/S13023-015-0294-X
P50
P577
2015-06-18T00:00:00Z
P5875
P6179
1031284652