Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
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Incidental Findings with Genomic Testing: Implications for Genetic Counseling PracticeGenomic intensive care: should we perform genome testing in critically ill newborns?Findings made in gene panel to whole genome sequencing: data, knowledge, ethics - and consequences?Lost in translation: returning germline genetic results in genome-scale cancer researchStakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.Parents' preferences for return of results in pediatric genomic research.Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey studyAttitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.Clinical genome sequencing and population preferences for information about 'incidental' findings-From medically actionable genes (MAGs) to patient actionable genes (PAGs)Genetic testing in the epilepsies-developments and dilemmas.Teaching genomic counseling: preparing the genetic counseling workforce for the genomic eraReturn of genomic results to research participants: the floor, the ceiling, and the choices in between.The "right not to know" in the genomic era: time to break from tradition?Translating personalized medicine using new genetic technologies in clinical practice: the ethical issuesPublic views on participating in newborn screening using genome sequencingFinding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.Clinical Management of Pediatric Genomic Testing.Informed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients.Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.The translational potential of research on the ethical, legal, and social implications of genomicsThe actress, the court, and what needs to be done to guarantee the future of clinical genomics.The fiduciary relationship model for managing clinical genomic "incidental" findings.Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment.An implementation framework for the feedback of individual research results and incidental findings in researchReporting Incidental Findings in Genomic Scale Clinical Sequencing-A Clinical Laboratory Perspective: A Report of the Association for Molecular Pathology.Management of Incidental Findings in the Era of Next-generation SequencingIdentification of Medically Actionable Secondary Findings in the 1000 Genomes.A protocol for the identification and validation of novel genetic causes of kidney diseaseLooking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice.Utility of next generation sequencing in clinical primary immunodeficiencies.Research participants in NGS studies want to know about incidental findingsReturning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.Getting personal: Head and neck cancer management in the era of genomic medicine.Preferences for the provision of whole genome sequencing services among young adults.Patients' views on incidental findings from clinical exome sequencing.A semiquantitative metric for evaluating clinical actionability of incidental or secondary findings from genome-scale sequencingCompare and contrast: a cross-national study across UK, USA and Greek experts regarding return of incidental findings from clinical sequencingTowards a European consensus for reporting incidental findings during clinical NGS testing.
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Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
description
article científic
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article scientifique
@fr
articolo scientifico
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artigo científico
@pt
bilimsel makale
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scientific article published on 16 May 2013
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@en
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@nl
type
label
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@en
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@nl
prefLabel
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@en
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@nl
P2860
P921
P356
P1433
P1476
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
@en
P2093
Sherman Elias
Susan M Wolf
P2860
P304
P356
10.1126/SCIENCE.1239119
P407
P50
P577
2013-05-16T00:00:00Z