Ethical and policy issues in genetic testing and screening of children.
about
Non-invasive prenatal testing for fetal chromosome abnormalities: review of clinical and ethical issuesIncidental Findings with Genomic Testing: Implications for Genetic Counseling PracticeGenetic research on biospecimens poses minimal riskRecommendations for returning genomic incidental findings? We need to talk!Developing context-specific next-generation sequencing policyPractical guidance on informed consent for pediatric participants in a biorepositoryACMG recommendations for reporting of incidental findings in clinical exome and genome sequencingViews of American OB/GYNs on the ethics of prenatal whole-genome sequencing.A Comprehensive Review of Pediatric Tumors and Associated Cancer Predisposition Syndromes.Findings made in gene panel to whole genome sequencing: data, knowledge, ethics - and consequences?To disclose, or not to disclose? Context matters.Return of genomic results to research participants: the floor, the ceiling, and the choices in between.The "right not to know" in the genomic era: time to break from tradition?Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice.Addressing the ethical challenges in genetic testing and sequencing of children.Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.Newborn Sequencing in Genomic Medicine and Public Health.Genetic testing of children for diseases that have onset in adulthood: the limits of family interests.Molecular diagnosis of long QT syndrome at 10 days of life by rapid whole genome sequencingMaternal Consequences of the Detection of Fragile X Carriers in Newborn ScreeningGenetic testing of children for adult-onset conditions: opinions of the British adult population and implications for clinical practice.Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening.How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Analytical and Clinical Validity Study of FirstStepDx PLUS: A Chromosomal Microarray Optimized for Patients with Neurodevelopmental Conditions.Parents' interest in genetic testing of their offspring in multiplex epilepsy families.Whole Genome Sequencing and Newborn ScreeningPoint-counterpoint. Patient autonomy and incidental findings in clinical genomics.Pharmacogenetics for Safe Codeine Use in Sickle Cell Disease.Screening for Familial Hypercholesterolemia in Children: What Can We Learn From Adult Screening Programs?Point-counterpoint. Ethics and genomic incidental findingsReturn of secondary genomic findings vs patient autonomy: implications for medical care.Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.Pharmacogenetics in clinical pediatrics: challenges and strategies.Management of asymptomatic gene carriers of transthyretin familial amyloid polyneuropathyLay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in BiobankingExperience, knowledge, and opinions about childhood genetic testing in Batten disease.Genetic biomarkers in hypertrophic cardiomyopathy.
P2860
Q26764809-F4FBCB80-94AC-4F6B-936E-0E04AC882D82Q26777211-51D85525-C22C-42E6-B27D-17CA370FA5CAQ26829694-6A1169D2-2A3C-4397-8DE1-88CD7B1022C0Q26995124-D008F264-4E16-43F3-AE66-6DE7EF7B5180Q28595477-BDE94260-13F2-4D90-B240-3203BBB15EB6Q28650458-C2DD161A-ED27-439C-A6B9-02082968BA4EQ29616235-6E5A5EE9-7BAE-4D19-8310-CA1040E38451Q30151607-022AF49E-B9C3-4F12-B10D-6FBFA71C77C7Q30252766-CA740C2B-6307-4170-BAB7-D113280D5829Q31114379-F06E6323-9F83-43D6-B13C-E898A59AA396Q33774038-269A6FF8-273F-465D-912D-76AE19AA7416Q34000877-1EA59716-F18F-4EB0-860D-7BB6473002E0Q34087461-CCA2ACBA-4644-4F6F-9A23-2CB710C7B95EQ34157264-EB12CC33-476C-40F6-B93F-736D95BED53FQ34408150-D203B30D-9630-4402-B13C-0426F4260896Q34483451-00BB4577-C916-40A4-910D-8B8F02253E70Q34549504-0F14C0B0-9A89-45F2-BF98-5F58E899275CQ34649741-62EA84C4-0B3D-4ABB-B013-FB835B9D47FBQ35232613-4ADA86E6-7BD1-4DB4-8806-5164F704E5FEQ35894764-F39F9964-BBCE-4DA2-9D6F-1D8DB76E2E82Q36116646-0B52C1A7-11E3-4C9B-86B1-F3F4492F20C4Q36184534-6015172E-0AE9-4B44-ADEC-0EC718E55B79Q36197077-9FE91B4C-B6BE-48FE-954D-52528BC3CAD6Q36197112-2B9224ED-35F5-4D0A-93C1-E79ACD62C447Q36327651-1FF4372A-4C61-4587-B0F5-8EB4FC2A9169Q36552449-D60206CC-328D-417E-ABA2-7A93219DA02CQ36843628-DAD40A15-28D1-43D0-9B6B-CD2B979BC080Q37040336-5B130F06-9C98-4246-BA53-0A52500117F0Q37047429-62BC0845-FEF4-41A1-8169-AAC419317D46Q37069579-75CBDFE4-2CE1-4669-9F86-129CB98D5620Q37169821-B0A316D2-95C3-44FD-A4CB-8C43321863C0Q37239957-F8112BA1-3C52-4C1E-8B36-2B9A71B1BBB7Q37297065-AA40248A-315D-49F1-96B4-F60E55FFEE00Q37360685-2DC51100-B8A0-415C-8675-065793D36397Q37397625-3865C84F-4949-4C97-9DF3-2B6E7804A791Q37400384-B1DDEA9A-9756-4ADE-B461-157E04F7CBE1Q37420577-29D15A2D-3D74-4448-A766-826CAB3F3405Q37546095-87A48438-385C-42E5-89A8-120721172E61Q37572185-2C2ECAC2-1B5C-44C4-B03F-8DFB2739C9B8Q38125765-3790DF44-1304-42FA-8115-A0D131176F1C
P2860
Ethical and policy issues in genetic testing and screening of children.
description
2013 nî lūn-bûn
@nan
2013 թուականի Փետրուարին հրատարակուած գիտական յօդուած
@hyw
2013 թվականի փետրվարին հրատարակված գիտական հոդված
@hy
2013年の論文
@ja
2013年論文
@yue
2013年論文
@zh-hant
2013年論文
@zh-hk
2013年論文
@zh-mo
2013年論文
@zh-tw
2013年论文
@wuu
name
Ethical and policy issues in genetic testing and screening of children.
@ast
Ethical and policy issues in genetic testing and screening of children.
@en
Ethical and policy issues in genetic testing and screening of children.
@nl
type
label
Ethical and policy issues in genetic testing and screening of children.
@ast
Ethical and policy issues in genetic testing and screening of children.
@en
Ethical and policy issues in genetic testing and screening of children.
@nl
prefLabel
Ethical and policy issues in genetic testing and screening of children.
@ast
Ethical and policy issues in genetic testing and screening of children.
@en
Ethical and policy issues in genetic testing and screening of children.
@nl
P2093
P921
P356
P1433
P1476
Ethical and policy issues in genetic testing and screening of children.
@en
P2093
AMERICAN COLLEGE OF MEDICAL GENETICS AND
COMMITTEE ON BIOETHICS
COMMITTEE ON GENETICS, AND
GENOMICS SOCIAL
LEGAL ISSUES COMMITTEE
P304
P356
10.1542/PEDS.2012-3680
P407
P577
2013-02-21T00:00:00Z